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WinRho - Any luck with long term increase?

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15 years 2 weeks ago #11515 by annalee516
WinRho - Any luck with long term increase? was created by annalee516
I am currently treating with WinRho, and it works for a few weeks/months and then right back down? Anyone have any luck for long term remission? I am allergic or have a bad reaction to the treatments, but luckily it only lasts on treatment day, unlike on the steroid pulses. (YUCK, can you say crazy person?) Thanks!!

At last count 30k

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15 years 2 weeks ago #11524 by tamar
Replied by tamar on topic Re: WinRho - Any luck with long term increase?
Yes, I used WinRho for several years, and it gradually started lasting longer and longer. A couple of years when I didn't catch a virus I only had treatments twice a year.

Then I tried a low-dose rituxan treatment, and while it didn't initially seem to work, 6 months later I topped 100K, I've only been under 100K a few times (that I know of) in the past 3 years.

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Platelet Disorder Support Association

Platelet Disorder Support Association
8751 Brecksville Road Suite 150
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IMPORTANT!

The Platelet Disorder Support Association does not provide medical advice or endorse any medication, vitamins or herbs. The information contained herein is not intended nor implied to be a substitute for professional medical advice and is provided for educational purposes only. Always seek the advice of your physician or other qualified healthcare provider before starting any new treatment, discontinuing an existing treatment and to discuss any questions you may have regarding your unique medical condition.