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nplate

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15 years 3 weeks ago #11141 by blkilianek
nplate was created by blkilianek
is anybody out there taking the nplate injections, if so what kind of side effects are you having

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15 years 3 weeks ago #11186 by Tad Moody
Replied by Tad Moody on topic nplate
I assume these are Nplate side effects I am having:

Numbness and / or tingling and / or pain in my hands and feet, upset stomach, dizziness, and visual disturbances.

They "come and go" some days are very intense, other days, absolutely nothing. And this is a heck of a lot better than being all bruised and bloody and oozy!

I've noticed too that since I've been taking Nplate, ( over a year ), I have NOT had a headache nor a hangover!

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  • Kelirae24
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  • I'm 31 years old and a mom to two awesome little boys, I was diagnosed with itp when I was 17 years old. With no treatment my counts are 0-5 I am currently on nplate and I had a splenectomy in 2004
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15 years 3 weeks ago #11291 by Kelirae24
Replied by Kelirae24 on topic Re: nplate
Im in my 5th week w nplate no side effects really seems to help a little highest i have been is 43 then this weekend ended up in the hospital w a count of 1k how long did it take to work for you? it seems every shot i get I crash before they get better and i experience tingling in the hands every now and then

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  • server
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  • newcreationchangingdaily
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15 years 3 weeks ago #11301 by server
Replied by server on topic Re: nplate
Hello blkilianek
I assume the reason your asking is because your taking it? What dosage? Are you having side effects?
I took NPlate for a bit. The joint and muscle pain was more than I could handle. It did take my counts way way up, upper 300's, but that's not good either, being that high that quick because of meds can cause clotting.
My flesh and my heart may fail, but God is the strength of my heart and my portion forever.
Psalm 73:26
Blessings,
gretchen
The following user(s) said Thank You: Mordii

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15 years 5 days ago #11731 by Mordii
Replied by Mordii on topic Re: nplate
I have been on N-plate for 77 weeks. Numbers range from 60's to mid 120's. Average is around 85. Side effects not bad. I'm not keen on giving up my spleen, yet.

Take care,
Mordii

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15 years 4 days ago #11757 by 28lorelei
Replied by 28lorelei on topic Re: nplate
Mordii, with your numbers, if I were you I wouldn't give up your spleen. I have my numbers in the 70k-100k range usually, I guess, and live a normal life. They are perfectly safe counts, although it may take slightly longer to coagulate.

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  • Angel85
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  • I am 27 years old from Australia and I have T.A.R Syndrome. My email address is not showing on my profile for some reason so it is blossom_242@hotmail.com for anyone who wants to send me an email.
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15 years 4 days ago #11760 by Angel85
Replied by Angel85 on topic Re: nplate
I was on Nplate early last year and i am headache/mirgaine prone anyway and it made my headaches to the point of unbearable and gave me joint pain mainly. Didn't get much more side effects then that.

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Platelet Disorder Support Association

Platelet Disorder Support Association
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IMPORTANT!

The Platelet Disorder Support Association does not provide medical advice or endorse any medication, vitamins or herbs. The information contained herein is not intended nor implied to be a substitute for professional medical advice and is provided for educational purposes only. Always seek the advice of your physician or other qualified healthcare provider before starting any new treatment, discontinuing an existing treatment and to discuss any questions you may have regarding your unique medical condition.