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WHAT CAN I EXPECT NOW ?

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15 years 1 week ago #8594 by gothicgirl
WHAT CAN I EXPECT NOW ? was created by gothicgirl
So Monday of this week I took my final Prednisilone tablet. I see my haematologist again in 6 weeks. I want to know what I can expect now I am off the tablets. I mean in the way of wihtdrawal....is there any ? what symptoms ? Thanks for any help :)
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15 years 1 week ago #8605 by lili
Replied by lili on topic Re: WHAT CAN I EXPECT NOW ?
I found I was very, very tired off the pred. That lasted for about 2 months. You might continue to have other tapering effects as well, like aches and pains.

Lily
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15 years 1 week ago #8615 by kantooh86
Replied by kantooh86 on topic Re: WHAT CAN I EXPECT NOW ?
hair loss
  • Sandi
  • Offline
  • Sandi Forum Moderator Diagnosed in 1998, currently in remission. Diagnosed with Lupus in 2006. Last Count - 344k - 6-9-18
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15 years 1 week ago #8616 by Sandi
Replied by Sandi on topic Re: WHAT CAN I EXPECT NOW ?
If you aren't feeling anything by now, you might not. Most people have withdrawal during the whole tapering process, especially at the end (20 mg's on down).
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15 years 1 week ago #8617 by eklein
Replied by eklein on topic Re: WHAT CAN I EXPECT NOW ?
I agree with Sandi. It isn't that last time when you don't take a pill, it's the weeks or months when you are getting down to a low dose.
Erica
And she was!
Diagnosed May 2005, lowest count 8K.
4/22/08: 43K (2nd Rituxan)
10/01/09: 246K, 1/8/10: 111K, 5/21/10: 233K
Latest count: 7/27/2015: 194K
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15 years 1 week ago #8634 by Michelle
Replied by Michelle on topic Re:WHAT CAN I EXPECT NOW ?
I don't know - my hair didn't start falling out until after I was off it completely. And it fell out for about two months - and I have thin hair as it is.

The whole being super tired thing - I felt that during the taper.

-Chelle
  • karenr
  • Offline
  • Diagnosed in 2000, at 59, after being on moderately high doses of NSAIDs for arthritis. Splenectomy and rituxan both failed (2004). Did well on prednisone till summer 2018--then terrible reactions. Promacta since 11-19.
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15 years 1 week ago #8635 by karenr
Replied by karenr on topic Re:WHAT CAN I EXPECT NOW ?
I can't tell how big your tablets were, but it sounds as if you tapered rather quickly. It is possible that you won't have the traditional side-effects. When I've been able to go off pred entirely, the only side-effects I noticed were that my arthritis was worse since pred was the only anti-inflammatory I was taking. About hair loss--for some reason, for some people, it seems often to occur 2-3 months after the body has undergone a shock.
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15 years 1 week ago #8702 by Rhiannon
Replied by Rhiannon on topic Re:WHAT CAN I EXPECT NOW ?
It depends on how long you were on the course possibly. I am seemingly only ever on them at full dosage for one week or two weeks at the max then about 6 weeks tapering off. The only side effects I knowing get is the moonface look which goes when stop taking them. I got very hungry feeling all the time which is caused by the red coating but learned how to control the diet with slimming world in UK so didn't put even a pound on last time was on them. The other side effect I got whilst taking them was indigestion. I didn't get any side effects as far as I know once off them. Every one of us is different and all respond different. Some don't get any side effects off them - like myself. Some do. There is no hard and fast rule of what to expect. Just relax and go with the flow and if something crops up then ask your heamatologist. It can be that easy.
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The Platelet Disorder Support Association does not provide medical advice or endorse any medication, vitamins or herbs. The information contained herein is not intended nor implied to be a substitute for professional medical advice and is provided for educational purposes only. Always seek the advice of your physician or other qualified healthcare provider before starting any new treatment, discontinuing an existing treatment and to discuss any questions you may have regarding your unique medical condition.


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