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5 months of Uhg-update

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15 years 2 weeks ago #8500 by snowtiger071
5 months of Uhg-update was created by snowtiger071
since i wrote my story i have had a few more hospitalazions and a couple of new rounds of IVIg. My hemo put me on Cytoxan and N-Plate on September 10th. Since then my counts have gone up frome 3,000 to 477,000. I havent ever had this high of a count.:woohoo: my highest ever was 226,000 and it only lasted for a little over a week. both me and my hemo are guardily optomistic that we have found the combonation that works for me. Today i felt like my old self and i have had more energy than i have had in months. I know it could still stop working at any moment but it is good to have the old me back. just wanted you all to know how i was doing. i will keep you updated. Kay
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15 years 2 weeks ago #8502 by HSheppard
Replied by HSheppard on topic Re: 5 months of Uhg-update
That's fantastic news Kay! I'm so excited for you. Here's to many platelets!
  • Sandi
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  • Sandi Forum Moderator Diagnosed in 1998, currently in remission. Diagnosed with Lupus in 2006. Last Count - 344k - 6-9-18
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15 years 2 weeks ago #8513 by Sandi
Replied by Sandi on topic Re: 5 months of Uhg-update
That's great, Kay. Just curious - have you tried N-Plate alone?
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15 years 2 weeks ago #8522 by snowtiger071
Replied by snowtiger071 on topic Re: 5 months of Uhg-update
yes Sandi i have. that is how i got the count of 226,000. but the following week it was down and with in a week and a half i was hospitalized with a count of 1,000. was given IVIg to bring my platlets up to a safe level and then had my spleen removed. the spleenectomy did not work for me. with in a week of surgery i was once again in the hospital with a count of 3,000. my hemo tried retuxin but had little effect. has another round of the IVIg and then was put on the cytoxan(25mg) and the N-plate. my immune system was so reved up from all the IVIg treatments it basicaly was attacking everything. the Cytoxan is being used to slow my immune system down and by doing so hopefully give the N-plate a better chance to work. so far it is working and i am looking forward to not having to take any kind of meds. hopefully if all goes well with in 6months i will be completly off both medications.
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The Platelet Disorder Support Association does not provide medical advice or endorse any medication, vitamins or herbs. The information contained herein is not intended nor implied to be a substitute for professional medical advice and is provided for educational purposes only. Always seek the advice of your physician or other qualified healthcare provider before starting any new treatment, discontinuing an existing treatment and to discuss any questions you may have regarding your unique medical condition.


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