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Perceived risk of stroke

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15 years 3 weeks ago #8345 by MaryArisaig
Perceived risk of stroke was created by MaryArisaig
Hi all, I was a member years ago but dropped out. I've had low platelets since age 4 and I'm now 66. Over the last year my blood pressure has risen and I now feel myself to be at risk of stroke. Has anyone else had this experience and can I ask what you did about it? Many thanks members.
  • Sandi
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  • Sandi Forum Moderator Diagnosed in 1998, currently in remission. Diagnosed with Lupus in 2006. Last Count - 344k - 6-9-18
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15 years 3 weeks ago #8346 by Sandi
Replied by Sandi on topic Re: Perceived risk of stroke
Hi Mary - how are your counts? Is your BP controlled?
15 years 3 weeks ago #8347 by
Replied by on topic Re: Perceived risk of stroke
If I were you I would be thankful the high blood pressure has been discovered - it is the silent killer as I'm sure you know. I do hope tha that you and your doctor are getting your high blood pressure under control!!
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15 years 3 weeks ago #8348 by DeeDee Marie
Replied by DeeDee Marie on topic Re: Perceived risk of stroke
Hi Mary,
Has your doctor been able to give you any medication to help control your blood pressure? Mine always seems to go up while I'm on Decadron treatment--but I do have a blood pressure kit and monitor it at home. A lot of the treatments they have given me either makes my b/p go up and sometimes it goes down very low.
  • Angel85
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  • I am 27 years old from Australia and I have T.A.R Syndrome. My email address is not showing on my profile for some reason so it is blossom_242@hotmail.com for anyone who wants to send me an email.
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15 years 3 weeks ago #8352 by Angel85
Replied by Angel85 on topic Re: Perceived risk of stroke
My blood pressure has always been perfect, it has only ever been high when I have been in pain
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15 years 3 weeks ago #8355 by MaryArisaig
Replied by MaryArisaig on topic Re: Perceived risk of stroke
Thanks Sandi, Melinda, DeeDee Marie and Angel85. I suppose what I'm really asking is - do you, or your doctors, see high blood pressure as a stroke risk of a greater degree than the risk to people with normnal platelet levels?
  • Angel85
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  • I am 27 years old from Australia and I have T.A.R Syndrome. My email address is not showing on my profile for some reason so it is blossom_242@hotmail.com for anyone who wants to send me an email.
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15 years 3 weeks ago #8357 by Angel85
Replied by Angel85 on topic Re: Perceived risk of stroke
No, i don't see it as being a greater risk and my doctors have never been that concerned with it either, that could be cause like i said mine is always usually perfect. I am concerned i might have issues with it later in life, but thats only because i have a family history of high blood pressure. My dad is currently on tablets to lower his blood pressure.
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15 years 3 weeks ago #8362 by DeeDee Marie
Replied by DeeDee Marie on topic Re: Perceived risk of stroke
Since I am in your age group (62), I think it is important to do what you can to try to keep b/p in a more normal range. I have read that because our platelets are "sticky", we could be at risk for more cardiac problems. So, we need to do what we can to try and help ourselves. Taking a blood lowering medication is important if you need to. Also, try to get some exercise in--like walking--or whatever you enjoy. I try to do some exercise 5 days a week; this seems to help.

As far as pain goes, the doctor told me it's normal for blood pressure to go up when you are in pain. Mine has always gone up when I am in pain.
  • Sandi
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  • Sandi Forum Moderator Diagnosed in 1998, currently in remission. Diagnosed with Lupus in 2006. Last Count - 344k - 6-9-18
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15 years 3 weeks ago #8375 by Sandi
Replied by Sandi on topic Re: Perceived risk of stroke
Mary - the answer to your question is that it depends on your platelet levels. Very low platelet levels could raise the risk of stroke with high blood pressure. The trick is to get the BP under control.
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