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Anyone develop a unpleasant "taste" from Rx??

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15 years 1 month ago #7363 by SteveC
Anyone develop a unpleasant "taste" from Rx?? was created by SteveC
Not going to indicate what I'm on yet so as not to influence responses. Seems real, but wonder if I'm imaging this?? Seem to have developed an unusual taste bud(s) that's not entirely pleasant, even without eating. :S
Blessings of enough...
Faith to trust our Lord
Joy to share with others
Strength to help the weak
Love to share with the hurting

Steve C
  • server
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  • newcreationchangingdaily
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15 years 1 month ago #7364 by server
Replied by server on topic Re:Anyone develop a unpleasant "taste" from Rx??
I basically lost my taste buds on Prednisone. I occasionally got a funny "smell" or taste or something when I was on Nplate and Rituxan.
My flesh and my heart may fail, but God is the strength of my heart and my portion forever.
Psalm 73:26
Blessings,
gretchen
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15 years 1 month ago #7365 by Michelle
Replied by Michelle on topic Re:Anyone develop a unpleasant "taste" from Rx??
I do remember having dull taste buds when I took the Prednisone. Like - the taste of foods seemed to be muted. Not to mention that stuff tastes nasty in and of itself!

But it didn't stop me from eating, that's for sure!

Haven't noticed any changes in taste buds with the Rituxan - and I still seem to be eating like I was on the Pred. What's up with that!?

Didn't notice any difference from the Dex either.

Those are the only treatments I've had to be able to compare.
  • Sandi
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  • Sandi Forum Moderator Diagnosed in 1998, currently in remission. Diagnosed with Lupus in 2006. Last Count - 344k - 6-9-18
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15 years 1 month ago #7369 by Sandi
Replied by Sandi on topic Re:Anyone develop a unpleasant "taste" from Rx??
Prednisone. Like the others, I couldn't taste anything. I would eat hot salsa w/ chips every evening just to be able to taste.
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15 years 1 month ago #7373 by mendenmh
Replied by mendenmh on topic Re:Anyone develop a unpleasant "taste" from Rx??
A lot of medications produce changes in taste sensitivity, and funny residual tastes in the mouth. A very common case is a metallic/bitter taste.
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15 years 1 month ago #7375 by CindyL
Replied by CindyL on topic Re:Anyone develop a unpleasant "taste" from Rx??
I don't notice any difference in anything I eat. I am on 5mgs pred every day.
  • Sandi
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  • Sandi Forum Moderator Diagnosed in 1998, currently in remission. Diagnosed with Lupus in 2006. Last Count - 344k - 6-9-18
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15 years 1 month ago #7376 by Sandi
Replied by Sandi on topic Re:Anyone develop a unpleasant "taste" from Rx??
I don't notice it on the low doses either, Cindy, but I sure did on higher doses.
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15 years 1 month ago #7378 by eklein
Replied by eklein on topic Re:Anyone develop a unpleasant "taste" from Rx??
It's funny what you said about hot salsa. I love spicy foods, and I do remember that I could eat spicier things when I was on prednisone. But I didn't associate it with less ability to taste!
Erica
And she was!
Diagnosed May 2005, lowest count 8K.
4/22/08: 43K (2nd Rituxan)
10/01/09: 246K, 1/8/10: 111K, 5/21/10: 233K
Latest count: 7/27/2015: 194K
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15 years 1 month ago #7383 by juliannesmom
Replied by juliannesmom on topic Re:Anyone develop a unpleasant "taste" from Rx??
I like wine, but, on decadron, it all tasted spoiled. I poured out most of two bottles before realizing it was the medication. Biaxid (antibiotic) gave me a bitter taste constantly, and even water was awful. (Tasted like bug spray smells.) With both of those meds, I regained my normal sense of taste after being off them for a couple days.
Norma
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15 years 1 month ago #7389 by Lorie85
Replied by Lorie85 on topic Re:Anyone develop a unpleasant "taste" from Rx??
Yep I had the muted taste on decadron pulse too. The food taste was muted for almost a week after the pulse ended
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15 years 1 month ago #7417 by SteveC
Replied by SteveC on topic Re:Anyone develop a unpleasant "taste" from Rx??
Thanks all for participating in my non-scientific survey. Never know now if I'm imagining/exaggerating something.

I'm on 75mg pred with 5mg weekly taper(started 100mg). Received my 1st Rituxan infusion 10 days ago and my 2nd yesterday. I started noticing the "taste" just several days ago (post #1 Rituxan).

I'd describe it as metallic although I've never eaten metal, but that seems to somehow describe it. I have it all the time, even when not eating and it's annoying because nothing removes it. Assume it Rituxan and thus I'll have it for another 2-4 weeks.

BTW my IVIg pushed me from 17 to 181 but within 6 days back down to 23 - didn't last long :(

Another count Thur - It's limbo time kiddos, how low can I go? ;)
Blessings of enough...
Faith to trust our Lord
Joy to share with others
Strength to help the weak
Love to share with the hurting

Steve C
  • Sandi
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  • Sandi Forum Moderator Diagnosed in 1998, currently in remission. Diagnosed with Lupus in 2006. Last Count - 344k - 6-9-18
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15 years 1 month ago #7419 by Sandi
Replied by Sandi on topic Re:Anyone develop a unpleasant "taste" from Rx??
I've had the metallic taste from some antibiotics, but not Rituxan. Strange.
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15 years 1 month ago #7517 by juliannesmom
Replied by juliannesmom on topic Re:Anyone develop a unpleasant "taste" from Rx??
Tart fruity drinks (orange juice, limeade, lemonade) helped briefly relieve the nasty taste when I was on biaxid. Nothing really worked much, however, until I was off the medicine.
Norma
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