Think Im on the slippery slide again

Hi

Had my IVIG nearly 3weeks ago now which increased my count to 140. Im due to go back on Tuesday to have my bloods checked but I think its dropping. Ive felt great since I had the infutions but the last couple of days Ive been feeling really low and Im so tired. Ive woken this morning to a whole lot of new bruises and I have blood in my urine.. thats something I havent had before.

Im really hoping I dont have to have IVIG again because I have a 12 month old baby girl and its so hard being away from her. My family dont live close so its just my partner and myself.. I feel so low

I think the hardest part of ITP is the fear and isolation from anyone who can relate to our fears. Sure friends are compassionate and offer their availability but I worry of tiring them with my endless fears and anxiety (especially if on prednisone). Our loved ones are very scared and we don't want to "scare" them anymore. This place helps me through that. WE ARE IN THIS TOGETHER! We do understand - we are there and doing it - not been there done that and moved on. The people here offer hope and encouragement everyday via their liveliness. I pray you find their life stories helpful and hopeful - there is an amazing life waiting for each of us to embrace. Think of how that positive life will impact your child. In some ways ITP will make our lives more special and that is a gift I hope to share with my friends. If that could be my legacy, I would be satisfied beyond measure.

Blessing for peace and joy in our lives.

I'm sorry RedGirl. I can relate, kinda! I'm feeling low too, and I think my counts are dropping too. Noticed a small bruise this morning and started my period 10 days early and it's a doozy! And the heat! It's been 90+ for about 2 weeks now. It's getting old! I agree with Steve, we're here for you. I know, we're not there to watch your child for you, but we are here for emotional support. I'll be praying it works out for you.

Thanks Steve and Gretchen, I really dont think I would be coping as well as what I am if it wasnt for this site and all the support. I know this isnt going to kill me but its still hard coping with something that is impacting my life so much at the moment. Its the constant stays in hospital and not knowing whats going to happen next.

Going by what Ive read on this site I think what Im feeling is due to it being early days and the fact I was only diagnosed 2 months ago. I know a point will come when Ill accept what is happening and you are right right Steve, there is a wonderful life just waiting for me and everyone else.

Thank you again for the support xx

I know just how you feel. I'm on the slippery slide again and just trying to grasp for some hope. At the present, nothing seems to be bringing up my platelets and I'm trying not to take any additional medications if they are not going to work. The doctors just seem to throw everything at you as if you are not very smart or up to date on ITP. I keep asking them questions, and they get a little upset with me. I've been off and on the ITP website for the last 4 years eventhough I was in remission so that I would be ready if my ITP did return.

I really miss the fact that I missed the ITP Conference in Las Vegas! I knew I should have been there.

Thanks for all your support!

DeeDee Marie (Diane)