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Just A Quick Hello

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15 years 2 months ago #6520 by Kelly H
Just A Quick Hello was created by Kelly H
Hi everybody,

I like the new digs! I haven't been around in a long while as my hobby which will hopefully soon become a business occupies a lot of my time.

Since it's been so long I'll give a quick run down about me. I'm 38 years old and I was diagnosed with ITP in June of 2002. I've had my spleen out, prednisone doesn't work and IVIG works but only keeps my levels up at a decent amount for 1-1/2 to 2 weeks. The last IVIG infusion was about 2-1/2 years to prepare me for surgery to have endometriosis(sp?) removed. My counts sit around 3-5K which really sucks and I try not to let it bother me but with the daily reminder with those little red spots it's hard not to think about it.

Anyway, it's nice to be back here,

Kelly
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15 years 2 months ago #6531 by server
Replied by server on topic Re:Just A Quick Hello
wb Kelly. Life is going pretty well for you then? I'm glad to hear that! I'm 46 and was diagnosed in February 2010. Prednisone didn't work for me either. Did Nplate for a bit and it worked great, to good even, brought my counts up over 350. Don't like the side effects though. Had a round of Rituxan. I think it worked for a bit but my counts are starting to drop again. We'll see.
How come you quit coming here?
My flesh and my heart may fail, but God is the strength of my heart and my portion forever.
Psalm 73:26
Blessings,
gretchen
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15 years 2 months ago #6532 by Dina
Replied by Dina on topic Re:Just A Quick Hello
What side effects did you experience with Nplate? How long were you on it? Did your counts drop really low after you stopped taking it? My hematologist recommended that I consider Nplate.
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15 years 2 months ago #6545 by server
Replied by server on topic Re:Just A Quick Hello
The NPlate brought my counts up really, really high, which isn't good because NPlate causes your bone marrow to make more platelets and new platelets are really big and very sticky and can cause clots. My biggest side effect is the joint pain. I've been off NPlate for over 6 weeks now and still have the joint pain. Some days are better than others. I didn't have the drastic drop because I was on Rituxan at the same time. I believe the Rituxan kicked in so my count didn't drop to much, though it is dropping now.
My flesh and my heart may fail, but God is the strength of my heart and my portion forever.
Psalm 73:26
Blessings,
gretchen
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15 years 2 months ago #6557 by n3ha
Replied by n3ha on topic Re:Just A Quick Hello
Hey Kelly...
Now that you have only 3-5k platelets, can you tell me what treatment are you undergoing right now ??
Because even my current platelets are 17k and i dont know what to do as i have exhausted mostly all available options :(
Please advice.
Thanks
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The Platelet Disorder Support Association does not provide medical advice or endorse any medication, vitamins or herbs. The information contained herein is not intended nor implied to be a substitute for professional medical advice and is provided for educational purposes only. Always seek the advice of your physician or other qualified healthcare provider before starting any new treatment, discontinuing an existing treatment and to discuss any questions you may have regarding your unique medical condition.


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