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Diagnosed in 2000--Spleenectomy in 2001

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15 years 3 months ago #5944 by Cheribelle
Diagnosed in 2000--Spleenectomy in 2001 was created by Cheribelle
It has been quite a long time since I have been to the ITP discussion group pages. I was diagnosed with ITP in 2000 and after taking prednisone for a few months I elected to have a spleenectomy. Since that time my platelets have ranged from 650,000 (right after surgery) to around 250,000 now. It has been 9 years now and I am very glad that my platelets have stayed up where they should be. My question is basically if anyone knows whether there has been any new research done on how long a spleenectomy lasts and if I can reasonably say that I am "cured" of ITP? Does anyone know of any ITP sufferers who had the surgery and stayed in remission for many years? When I was diagnosed and had the surgery, my doctors told me that there was no long-term research that could say for sure that my ITP would not come back. I am reasonably healthy now and I have not experienced any side-effects from being sans spleen such as increased infections or illnesses. I am actually disgustingly healthy for a 49 year old (somewhat overweight) woman. I have gone back to college and I am very close to earning my masters degree now. I still list ITP on my medical history whenever that comes up, and I wonder sometimes if that is even necessary anymore? I would appreciate anyone's replies or would be willing to give my feedback and experiences if anyone wants them. Thanks everyone....
Cheri
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15 years 3 months ago #5948 by server
Replied by server on topic Re:Diagnosed in 2000--Spleenectomy in 2001
first I gotta say Congratulations! And welcome back! In my opinion you should still put it on you medical history. I'm sure you gotta mention that you don't have a spleen! So them knowing the reason for that seems appropriate. And it can rear it's ugly head at any time. Good for them to have the heads up!

My flesh and my heart may fail, but God is the strength of my heart and my portion forever.
Psalm 73:26
Blessings,
gretchen