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my count today

  • server
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15 years 3 months ago #5904 by server
my count today was created by server
has dropped to 44. :unsure: I dunno. It's been a month since I've had NPlate and 3 weeks since ending Rituxan. It's looking like the Rituxan isn't working. I know....gotta give it more time. I'm getting discouraged. And I'm more than tired of waiting. I'm just plain tired!
My flesh and my heart may fail, but God is the strength of my heart and my portion forever.
Psalm 73:26
Blessings,
gretchen
  • Sandi
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  • Sandi Forum Moderator Diagnosed in 1998, currently in remission. Diagnosed with Lupus in 2006. Last Count - 344k - 6-9-18
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15 years 3 months ago #5915 by Sandi
Replied by Sandi on topic Re: my count today
Gretchen - I know it's not what you wanted to hear, but on the bright side...it's been 3 weeks of no treatments and it's still a safe number. I know remission is always the goal, but this is the next best thing.
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15 years 3 months ago #5920 by server
Replied by server on topic Re: my count today
I know what your saying Sandi. My count has dropped from 288 to 44 in 2 weeks though. Next week they are gonna flush my port and my nurse said she was gonna leave the needle in "just in case". I don't want any more platelet transfusions. I don't think I want the NPlate anymore either. The joint pain was starting to be to much. And it always took my counts to high. I'm not having any symptoms....yet. We'll see.
My flesh and my heart may fail, but God is the strength of my heart and my portion forever.
Psalm 73:26
Blessings,
gretchen
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15 years 3 months ago #5927 by NatalieM
Replied by NatalieM on topic Re:my count today
I'm sorry your count has dropped, but like Sandi said, 44 is not a bad number. And...I know you are sick of hearing this, but give the Rituxan time...it might just "kick in!"

Nat
*Here's to high platelets!*
  • server
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15 years 3 months ago #5956 by server
Replied by server on topic Re:my count today
I know 44 isn't bad, I could live with that. It's the fact that they are falling that upsets me. I've come to the decision that I'm not going to treat until I have symptoms, which I don't currently have, except tiredness, which is everyday life and I'm learning how to handle it. I'm upset that the meds appear to not be working. I know.....wait. I am! :)
My flesh and my heart may fail, but God is the strength of my heart and my portion forever.
Psalm 73:26
Blessings,
gretchen
  • Angel85
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  • I am 27 years old from Australia and I have T.A.R Syndrome. My email address is not showing on my profile for some reason so it is blossom_242@hotmail.com for anyone who wants to send me an email.
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15 years 3 months ago #6002 by Angel85
Replied by Angel85 on topic Re:my count today
Nplate is supposed to get you safe counts, not normal counts. They told me around 50 is what they aim for with Nplate, so your not far off it, so i wouldn't worry about it.
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15 years 3 months ago #6023 by Lorie85
Replied by Lorie85 on topic Re:my count today
Hey Gretchen I can empathise. Chin Up know that at least one person is envious of ur counts... Meeee lol (1 K last week). But I hope that ur counts go up on soon and your remission is coming!
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15 years 3 months ago #6040 by server
Replied by server on topic Re:my count today
Thank you Lorie. I was at 1 at one point myself. Praying your counts come up too! What treatment are you on?
btw, I have a new bruise just this afternoon. :(
My flesh and my heart may fail, but God is the strength of my heart and my portion forever.
Psalm 73:26
Blessings,
gretchen
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15 years 3 months ago #6056 by Lorie85
Replied by Lorie85 on topic Re:my count today
Gretchen, I've been on 200mgs Imuran/Azathioprine for the last 8 weeks with limited results. the highest i've been is 4k and still have elevated white blood cells every cbc. I am at a point where i'm not watching numbers anymore but treating symptoms. I went to the beach, go out with friends, went to work trying to live as normally as possible. I still struggle with tiredness though but most of the time if you didnt tell me I was sick I wouldnt know!
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15 years 3 months ago #6069 by server
Replied by server on topic Re:my count today
wow, 8 weeks on the same meds with no real response? That sounds crazy to me! How long do you have to wait before they move on to something else? Or do you want to move on to something else? You have a wonderful attitude. I see you were diagnosed shortly before me. I try to have a positive attitude all the time to, but sometimes I get over-whelmed. I took some time off work but went back May 1st. I'm glad I did. I'd be stir crazy now if I didn't!
My flesh and my heart may fail, but God is the strength of my heart and my portion forever.
Psalm 73:26
Blessings,
gretchen
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15 years 3 months ago #6083 by Lorie85
Replied by Lorie85 on topic Re:my count today
Well Gretchen where i live it's azathioprine (very poor responder to steroids nad very high doses dont last more than 10 days) or my spleen.... and the spleen stays! so i should be in New York in a few days. Hoping for more options when I get there. the positive attitude is not my own. This may sound strange but ITP has changed me so much. before i used to think of all the things i wanted and didnt have. Now I just feel so grateful, and so thankful and have a deeper faith that gives me peace that surpasses my understanding :laugh: . That gets me through the hard days.
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