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Home after splenectomy

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15 years 5 months ago #3289 by Joya
Home after splenectomy was created by Joya
Hi Everybody,

I had my splenectomie on monday and just got home.. I feel okay.. No pain in my shoulders but I'm unable to breath in cus that hurts to bad.. The surgery went well.. And actually I'm doing great considering..

Xx
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15 years 5 months ago #3298 by farida
Replied by farida on topic Re:Home after splenectomy
glade that everything went well,and you are home now, i was thinking about you ,i alwayse read your post, my son will do the operation 05/17 , weak earlier , surgan dosn't have time on may 24,good luck joya , keep updating us
nahed
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15 years 5 months ago #3299 by farida
Replied by farida on topic Re:Home after splenectomy
joya

i see you online , what about the platelts coun? this mean you spent to night in the

hospital,is this correct? :laugh:
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15 years 5 months ago #3301 by Joya
Replied by Joya on topic Re:Home after splenectomy
Hey hey!

My counts went from 273 on monday to over 330 on thuesday.. So that's great!
I spent 2 nights in the hospital cus my bloodpressure was way to low and I stopped breathing a couple of times.. But I'm home now and feeling okay..
Have another blood test in 2 weeks.. I thought that was a long time but the hem. was sure I would be fine..

Xx
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15 years 5 months ago #3303 by rere
Replied by rere on topic Re:Home after splenectomy
Hello Joya,
Aren't you glad to have the operation behind you. Tomorrow will be two weeks since mine and I am feeling back to myself. I had a CBC yesterday and my count was 370k. Keeping my fingers crossed. Back to work on Monday. I wish you high platelets.
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15 years 5 months ago #3304 by Lorie85
Replied by Lorie85 on topic Re:Home after splenectomy
So Happy that you are home! I prayed for you and was wondering what happened. Speedy recovery Joya. Keep us posted
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15 years 5 months ago #3305 by Joya
Replied by Joya on topic Re:Home after splenectomy
Thank you all for the love and support! It makes me feel great..

I can't emagine doing everything within two weeks but I'm very positive and indeed happy it's over with.. I did have some problems with the anesticia.. And didn't react good to the morfine.. But now that's behind I'm feeling a lot better!!

I will keep you all posted!!

XxXx
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15 years 5 months ago #3307 by farida
Replied by farida on topic Re:Home after splenectomy
joya that is good , you will be better soon, how did you get count heigh befor the surgary, ivig or predinsone? im sorry if i asked a lot,
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15 years 5 months ago #3309 by Joya
Replied by Joya on topic Re:Home after splenectomy
Hey Farida..!

You can ask me anything, I'm happy to tell you everything I experienced!
I had IVig for 2 days the week before surgery.. That got my counts up to 273! The day after surgery my counts were over 330..

Xx
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15 years 5 months ago #3326 by tortie
Replied by tortie on topic Re:Home after splenectomy
Hopefully you can get back to your life soon!

Best wishes
  • Angel85
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  • I am 27 years old from Australia and I have T.A.R Syndrome. My email address is not showing on my profile for some reason so it is blossom_242@hotmail.com for anyone who wants to send me an email.
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15 years 5 months ago #3345 by Angel85
Replied by Angel85 on topic Re:Home after splenectomy
Glad to hear it all went well for you, I was thinking about you all week. Wow they are up high, hope they continue to stay high for you xox
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15 years 5 months ago #3350 by farida
Replied by farida on topic Re:Home after splenectomy
good morning joya how are you doing today ? i hope you feel better.give yourself a good day dear.
nahed
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15 years 5 months ago #3353 by Joya
Replied by Joya on topic Re:Home after splenectomy
Hey Farida,

My day is okay.. I keep on feeling sick to my stumic wich makes it hard to eat.. And becouse I don't eat enough I don't have any energy. But my mom is making soup now.. So hopefully I'll be able to eat that..

Xx
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15 years 5 months ago #3359 by Nisse
Replied by Nisse on topic Re:Home after splenectomy
Hope you are feeling better :) That is great about your numbers! Best Wishes for a quick recovery!
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15 years 5 months ago #3377 by farida
Replied by farida on topic Re:Home after splenectomy
how was the soup ? i hope you got more energy ? im sure tommorow will be better than today
nahed
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15 years 5 months ago #3391 by FranL
Replied by FranL on topic Re:Home after splenectomy
So glad your home and on the mend. I'm 15 days out and feeling almost normal again. Stamina and appetite are the last bits to get back to normal. Take it easy and definitely take it slow! High platelets to you!

Fran
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15 years 5 months ago #3395 by Joya
Replied by Joya on topic Re:Home after splenectomy
Hey Fran, good to hear you are feeling good!
I had a good day.. went to the pharmacy on my own.. wich felt like a huge accomplishment :P it was a long walk.. I ate more then yesterday.. and my moms soup was great!! And ate a delicious salad.. wich made me feel sick but it was great when I ate it! I only had one pain killer today.. I'm in pain now but I think the pain is better then the stoned feeling I get from the pain killers..

I'm going back to school on monday.. I'm bored at home.. During the day there is nobody here so I get bored.. I think I'll just go for one or two lessons, I miss my classmates :)

Xx
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15 years 5 months ago #3399 by Katie
Replied by Katie on topic Re:Home after splenectomy
Glad the surgery is behind you and that your counts are responding! I had my splenectomy about a month ago and my counts were 370k yesterday. I don't think I will ever get used to high counts!
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15 years 5 months ago #3435 by farida
Replied by farida on topic Re:Home after splenectomy
hi joya , how are you doing today?
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15 years 5 months ago #3442 by Joya
Replied by Joya on topic Re:Home after splenectomy
Hey Farida,

I'm doing good today! I stopped taking pain killers yesterday, wich ofcourse leads to more pain but I'm at home anyway so I don't have to move if I don't want to and I feel a lot better without them! Not so dizzy and sick..

I went to have icecream at the beach yesterday, the weather has been great here. We went by car and once I finished the icecream I was so tired so we went back home, but it was great to be outside of the house for a while.. Today I spent most of the day reading a book in the garden and sleeping..

I'm still thinking about going to school tomorrow for just one hour.. But am not sure if I'll go.. It's an hour by public transportation so that'll mean I won't be able to get home fast if I don't feel good.. But I'm so bored in and around the house..

How are you all doing?!

Katie I'm so happy for you that your counts are still up!!

Xx
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15 years 5 months ago #3444 by farida
Replied by farida on topic Re:Home after splenectomy
my son's prom on 5/14 and then he will have the operation on 5/17,i don't know if we have to go the hospital one night a head for blood test and operation's preperation , or will go to the hospital the same day may /17 any way we will figar out, im happy for you , when you are doing blood test again joya, keep update us
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15 years 5 months ago #3445 by Joya
Replied by Joya on topic Re:Home after splenectomy
Hey Farida,

I had to go the hospital one day ahead. But that's cus I had a morning surgery, I had my surgery at 09.00 o'clock in the morning.. I have to take a blood test 28th of april..

30th of april it's Queensday here!! I'm so exciting.. It will be my return to the party scene :P LOL

Xx
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15 years 5 months ago #3446 by farida
Replied by farida on topic Re:Home after splenectomy
good luck joya , thank you for your quick reply , i'm so worry, i can't imagen how is my son be alone having the operation , and i will be waiting until the operation be done,it will be the hardest time in my life, i love him so much , he is my baby, he is everything in my life, im sure God will help
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15 years 5 months ago #3447 by Joya
Replied by Joya on topic Re:Home after splenectomy
Hey Farida,

Don't worry.. He won't notice anything off the surgery and it will only take about 1.5 hour.. I had some problems waking up from the anesticia so I spent a long time in the recovery room but usually you should be back in your own room within 3 hours..
I am sure he will be fine! It's not as bad as it seems..

Xx
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15 years 5 months ago #3465 by farida
Replied by farida on topic Re:Home after splenectomy
joya my son has epeisode now for low plateles , his count was 167 last week , but he has mouth pilester and peticai , (may be spelling is worng) sorry english is my second langauge
anyway , i don't know what shall i do, he has a big exam tomorow, and he refused to go the hospital now, icalled his doctor asked us to take him to the hospital , my son wants to go after exam tomorow, at the same time today is sunday and they alwase give us hard time until they found a regualar room in the hospital,
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15 years 5 months ago #3473 by Joya
Replied by Joya on topic Re:Home after splenectomy
Hey Farida,

Did you end up going to the hospital with your son?
I didn't end up going to school today I was to tired this morning.. I'm now off to go see a movie at a friend who lives down the street.. It's good to be out off the house finally!!

Xx
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15 years 5 months ago #3501 by farida
Replied by farida on topic Re:Home after splenectomy
im in the hospital now , we went at 9:30 am after his test, and we been wating in the er until 6pm they transfered us regular room, until now with no treatment, his count is 5k , can anybody imagen that, his surgan was aout the state , they contact him to recommand another surgan, and then hema said he has to have to get his platelts at least 100k, while his surgan said he can do it even if its low and give him platelts tranfusion, they ordered the platelts and then canceled by hematoligest , this hematolgest was so roude make me upset , he is talking like he is the God , he wasn't ahuman at all , and im so worry i don't know why they put us on the oncology department, we will see what next
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15 years 5 months ago #3512 by Joya
Replied by Joya on topic Re:Home after splenectomy
Hey Farida,

5k is very low.. I'm sorry your son has to go threw all this.. But I don't really see why everybody is panicing like that.. Does your son shows signs of bleeding? Cus if he isn't it sucks that his counts are low but they should just be able to treat without the whole panicing..

Without treatment my counts have dropped to 3, 6 or unmessurable.. And although my hematologist would panic about it I was never admitted to the hospital since I didn't show any signs of bleeding..

Don't worry stay calm.. Your son will be fine eventhough things aren't going as great as we'd wish atm..

Xx
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15 years 5 months ago #3517 by farida
Replied by farida on topic Re:Home after splenectomy
hi joya , no he didn't have any sign of bleeding ,it's a biticea. in his arm,chest,and leg, so he knew its low, and i went to the hospital, i will be there for few days , to see what is next
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15 years 5 months ago #3548 by FranL
Replied by FranL on topic Re:Home after splenectomy
Day before my surgery my platelets were 41,000 (which is super high for me normally) and the surgeon said no go. I got a treatment of IVIG which boosted them to 83,000. Day of surgery was postponed a week and by then they had dropped a tiny bit to 72,000. My surgeon was happy with anything above 50,000 so we went forward. All was so much better than I had feared. In the hospital 2 days and released with 189,000 platelets! Three weeks later I am feeling pretty much back to normal and have super high platelets. My hemotologist assures me they will eventually settle into a normal range and I go back to see him May 4th. Feeling better every day!!!

Best of luck to you!!!
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