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Mast Cell Disorders

  • raph
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  • Chronic ITP, diagnosed 2018. Acute ITP at 6y/o, went into remission (no treatment). Reoccurred as an adult. Platelets up and down ever since :) last count 6. Treatments: Prednisone. Rituximab. Eltrombopag. Due to start Tavalisse soon!
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10 months 2 weeks ago - 10 months 2 weeks ago #73719 by raph
Mast Cell Disorders was created by raph
Hi everyone!
I have chronic ITP and I've recently been considering the possibility that I have comorbid mastocytosis or another mast cell disorder.
A study I read hypothesised that for some people ITP might be caused by mast cell disorders (unfortunately I lost the link).
The mayo clinic also lists bleeding disorders as a symptom of systemic mastocytosis.
I was wondering if anyone here has experience of ITP alongside a mast cell disorder or HaT (hereditary alpha-tryptasemia)?
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The Platelet Disorder Support Association does not provide medical advice or endorse any medication, vitamins or herbs. The information contained herein is not intended nor implied to be a substitute for professional medical advice and is provided for educational purposes only. Always seek the advice of your physician or other qualified healthcare provider before starting any new treatment, discontinuing an existing treatment and to discuss any questions you may have regarding your unique medical condition.


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