Platelet Disorder Support Association

Join Us:

Become a Member

Support Us:

Make a Donation
    Remember Me     Forgot Login?   Sign up   •  Web site Help & Info

!!! DISCUSSION GROUP RULES !!!

1. You must be a registered website user in order to post and comment. Guests may read only.
2. Be kind and helpful, not rude and cynical.
3. Don't advertise or promote anything. You will be banned from the group.
4. Report problems to the moderators. THANK YOU!

Platelet crash within 13 days of splenectomy

  • Badami
  • Topic Author
  • Offline
  • Parent of a child with itp for 8 years . No platelet stability Post splenectomy
More
1 year 3 weeks ago #73379 by Badami
Platelet crash within 13 days of splenectomy was created by Badami
My son 26 now was diagnosed with itp 7years ago.
Various medicines like ivig ,dapsone, mmf ,steroids , mmf and revolade and romiplostim etc did not stabilise his counts and they kept fluctuating for 7 years. Dr. Finally suggested a splenectomy and post surgery within 3 days platelet count was 12lakhs .
In 14 days they have crashed to 4000.

Does anyone have any clue why this could happen ?
Now what are the options left? 

Please Log in or Create an account to join the conversation.

  • mrsb04
  • Offline
  • ITP since 2014. Retired nurse. My belief is empower patients to be involved as much as possible in their care. Read, read, read & ALWAYS question medics about the evidence base they use.
More
1 year 3 weeks ago #73380 by mrsb04
Replied by mrsb04 on topic Platelet crash within 13 days of splenectomy
Badami
So sorry to hear this news. Unfortunately there is no guarantee that a splenectomy will work. Has your son tried Avatrombopag? 
The following user(s) said Thank You: Badami

Please Log in or Create an account to join the conversation.

More
1 year 3 weeks ago #73381 by MelA
Replied by MelA on topic Platelet crash within 13 days of splenectomy
As mrsb be mentioned, there is no guarantee a splenectomy will "cure".   From what I was told our bodies continue to make the antibodies that attach themselves to the platelets.   I've sorry the splenectomy did not work for your son!  Hopefully his body will adjust and get that count to a decent level!
"Instead of wasting your time worrying about symptoms, just get it checked out" -Nieca Goldberg, MD
The following user(s) said Thank You: Badami

Please Log in or Create an account to join the conversation.

  • Badami
  • Topic Author
  • Offline
  • Parent of a child with itp for 8 years . No platelet stability Post splenectomy
More
11 months 2 weeks ago #73437 by Badami
Replied by Badami on topic Platelet crash within 13 days of splenectomy
After 2 rounds of ivig+ dexameth+ revolade the platelets increased substantially to 1 million

Then Doc put him on only revolade (50) per day

However the crash is also rapid 
My son's platelets are decreasing by 200000 platelets  a day.

I have no idea how  the spurt to a million platelets  and subsequently why the rapid crash.? 
 Prior to splenectomy  I never saw his platelets go above
150000

Any advice or answers? 

Please Log in or Create an account to join the conversation.

Platelet Disorder Support Association

Donate

About

Stay Informed

Follow Us

IMPORTANT!

The Platelet Disorder Support Association does not provide medical advice or endorse any medication, vitamins or herbs. The information contained herein is not intended nor implied to be a substitute for professional medical advice and is provided for educational purposes only. Always seek the advice of your physician or other qualified healthcare provider before starting any new treatment, discontinuing an existing treatment and to discuss any questions you may have regarding your unique medical condition.


Platelet Disorder Support Association
8751 Brecksville Road, Suite 150, Cleveland, Ohio 44141
Phone: 1-87-PLATELET | 877-528-3538 (toll free) | or 440-746-9003
E-mail: pdsa@pdsa.org


© Copyright 1997 - 2024, Platelet Disorder Support Association. All rights reserved.
The Platelet Disorder Support Association is a 501(c)3 organization and donations are tax deductible to the fullest extent allowed by law.


Privacy Policy and Terms of Use