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ITP Guilt

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4 years 2 months ago #71887 by Ssigrist
ITP Guilt was created by Ssigrist
I had ITP when I was 11. I’m 50 now.  I have had no relapses since I was released from my 2 week hospital stay at 11.  

I deal with guilt from never relapsing.  

ive attended support groups for ITP and I’ve never met another person who wasn’t chronic.  I feel terrible around other folks with ITP because I certainly don’t understand what they  are going through and can’t figure out my role in the community that I feel like I should be a part of.  
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4 years 2 months ago #71888 by MelA
Replied by MelA on topic ITP Guilt
I don't understand your guilt - I've had ITP since 1989 and living a full life, even moved to Japan shortly after diagnosis and then to Hong Kong.   

You should not feel guilty - it wasn't your decision to never have low platelets again.  Have you thought about getting help in hopes of getting over this guilt?   Life is too short to have misplaced guilt. 

Take care now!!  
"Instead of wasting your time worrying about symptoms, just get it checked out" -Nieca Goldberg, MD
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4 years 2 months ago #71893 by Juliandrea85
Replied by Juliandrea85 on topic ITP Guilt
Don't be guilty, just happy! I've chronic itp since i was 11 years old also, and my doctor at that time was hoping itp was acute, not chronic, because the most part of children don't develop chronic itp.
Imagine to be guilty for every person in the world who suffers extreme poverty, illness, and many other problems. 
Allow yourself to feel free from itp, and also part of the community because we, al itp patients, need people to talk to, who understand us :) 
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4 years 2 months ago #71897 by Ssigrist
Replied by Ssigrist on topic ITP Guilt
Much appreciated.  I just feel like I wish there was something I could provide to the ITP community.
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4 years 2 months ago #71898 by poseymint
Replied by poseymint on topic ITP Guilt
Your story is important. It could provide much needed hope to the very worried parents of children with ITP. If my child had ITP I would certainly want to hear that it could resolve and not come back. And often a personal story is more effective at reassuring a frantic parent than a doctor with his statistics.

You’re not alone. We have answers! Contact PDSA to connect with life altering information, resources and referrals. 440.746.9003 (877.528.3538 toll-free) or PDSA@PDSA.org.

Platelet Disorder Support Association

Platelet Disorder Support Association
8751 Brecksville Road Suite 150
Cleveland, OH 44141
440.746.9003  |  pdsa@pdsa.org
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IMPORTANT!

The Platelet Disorder Support Association does not provide medical advice or endorse any medication, vitamins or herbs. The information contained herein is not intended nor implied to be a substitute for professional medical advice and is provided for educational purposes only. Always seek the advice of your physician or other qualified healthcare provider before starting any new treatment, discontinuing an existing treatment and to discuss any questions you may have regarding your unique medical condition.