Hi Meredith,
I was diagnosed in December 2020 when I went in for an annual check up with my doctor and my platelets were at 26k.
Working with a hematology team, it was attempted to wean me off of prednisone three times. My platelets seemed to respond well to the corticosteroid until I got down to 5mg and they would plunge. I am 3 weeks out from my last infusion of Rituximab and my platelets seem to have stabilized. Though it still a short time from the last treatment.
I have a friend who is a clinical nutritionist and has lots of functional medicine training. I'm working with her to look at food sensitivities and ways to support less inflammation in the body through diet. I am nearly 2 months into a modified v. of an anti-inflammatory diet (no dairy, wheat, eggs, soy, corn). Would love to hear from others if they have tried this route and learn together. I can't tell if there is a correlation with my platelet count because of how the timing coincides with the recent Rituximab treatment but the approach feels really helpful to me.