Platelet Disorder Support Association

Join Us:

Become a Member

Support Us:

Make a Donation
    Remember Me     Forgot Login?   Sign up   •  Web site Help & Info

!!! DISCUSSION GROUP RULES !!!

1. You must be a registered website user in order to post and comment. Guests may read only.
2. Be kind and helpful, not rude and cynical.
3. Don't advertise or promote anything. You will be banned from the group.
4. Report problems to the moderators. THANK YOU!

Joint Pain

More
4 years 7 months ago #69707 by Jojo2020
Joint Pain was created by Jojo2020
Hello everyone,

For the past two years I have noticed that every 6 to 8 weeks I get severe pain in all my joints that last for few days.
Mentioned it to my haematologist and he said it’s not related to ITP.

Does anyone else here with ITP, that also suffer cyclic flare ups of joint pain?

Best wishes,
Jojo

Please Log in or Create an account to join the conversation.

More
4 years 7 months ago #69751 by Carcamoc10
Replied by Carcamoc10 on topic Joint Pain
Hi Jojo,

I wanted to reply because I also get pretty bad joint pains regularly. They come and go, I haven’t noticed a pattern or a cycle though. It is very strange because it is only pain and no inflammation...the pain also seems to move from one place to the next on my body as if it’s radiating down to the next joint? It does not last longer than a couple of days for me personally. I have been off of any medications since September 2019 so I do not attribute my pains to that. I had been told by me hematologist that it was probably a side effect from Promacta but that is obviously not the issue for me! I hope I’m able to figure out what’s going on eventually because it’s terrible :/

Please Log in or Create an account to join the conversation.

More
4 years 7 months ago #69813 by voltron03
Replied by voltron03 on topic Joint Pain
Yes I have experienced flare ups like you mentionned as well, usually accompanied by some fatigue. My Hematologist said the exact same thing, that it isn't usually associated to ITP. I was convinced it was the onset of Lupus or Rheumatoid Arthritis but my antinuclear bloods tests came back negative. It remains a mystery.

Please Log in or Create an account to join the conversation.

More
4 years 7 months ago #69820 by gozorakgogo
Replied by gozorakgogo on topic Joint Pain
I too have increased joint pain in my hips and upper legs and lower back..so much so that I can not run as fluidly as I was able to not that long ago. Jogging, running mail and parcels up to front porches were a part of my daily life. No more I guess. I have also found that when my platelet levels drop below 30 or so the fatigue sweeps over me. I had to take yesterday off because it was so bad and I knew this past weekend before my Monday CBC that my levels were down because I was so freaking fatigued and tired. I was at a level of 22 down from 166 only 5 days before....damn this condition lol

Please Log in or Create an account to join the conversation.

Platelet Disorder Support Association

Donate

About

Stay Informed

Follow Us

IMPORTANT!

The Platelet Disorder Support Association does not provide medical advice or endorse any medication, vitamins or herbs. The information contained herein is not intended nor implied to be a substitute for professional medical advice and is provided for educational purposes only. Always seek the advice of your physician or other qualified healthcare provider before starting any new treatment, discontinuing an existing treatment and to discuss any questions you may have regarding your unique medical condition.


Platelet Disorder Support Association
8751 Brecksville Road, Suite 150, Cleveland, Ohio 44141
Phone: 1-87-PLATELET | 877-528-3538 (toll free) | or 440-746-9003
E-mail: pdsa@pdsa.org


© Copyright 1997 - 2025, Platelet Disorder Support Association. All rights reserved.
The Platelet Disorder Support Association is a 501(c)3 organization and donations are tax deductible to the fullest extent allowed by law.


Privacy Policy and Terms of Use