Platelet Disorder Support Association

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Struggling

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5 years 7 months ago #68633 by rwia1964
Struggling was created by rwia1964
I'm a 17 year old male, senior in high school. I was diagnosed in November 2019, and have gotten at least 4 treatments of IVIG, blood transfusions and platelet transfusions. Along with tons of IV steroids, and two different forms of oral. Tried promacta end of December, worked for about a month, and then just stopped. Going to start my 4th week of Nplate on Thursday, but I have yet to see a response to Nplate at all. I play volleyball, and because of ITP i have only been at a safe rang to play for about a month. I've consistently been below 5,000 for the last month, and between November and January ive almost always been below 10,000. Is there any hope for Nplate?
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5 years 7 months ago #68636 by DSD88i
Replied by DSD88i on topic Struggling
Could you perhaps look into the forum 'natural treatment methods' here and try some?
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5 years 7 months ago #68639 by JJ
Replied by JJ on topic Struggling
Nplate can take some time to get the right dose. There are ten different doses and it's a matter of increasing each week until something happens. Presumably you started on the first level dose and increased each week. If so you have a way to go yet before giving up.
  • karenr
  • Offline
  • Diagnosed in 2000, at 59, after being on moderately high doses of NSAIDs for arthritis. Splenectomy and rituxan both failed (2004). Did well on prednisone till summer 2018--then terrible reactions. Promacta since 11-19.
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5 years 7 months ago #68646 by karenr
Replied by karenr on topic Struggling
What dose of Promacta were you taking? When it stopped working for you, did you increase the dose?
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The Platelet Disorder Support Association does not provide medical advice or endorse any medication, vitamins or herbs. The information contained herein is not intended nor implied to be a substitute for professional medical advice and is provided for educational purposes only. Always seek the advice of your physician or other qualified healthcare provider before starting any new treatment, discontinuing an existing treatment and to discuss any questions you may have regarding your unique medical condition.


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