Hello everyone,
So I am going on 1 year with ITP (June 14th). I have been through two Hematologists and I have already failed the steroids (prednisone and dexamethasone), IVIG, and Rituxan (keeps yo-yoing) . I have recently relocated from CT back to NJ. I am down at the shore near Atlantic City and was hoping that someone could recommend any doctors down here. It is almost exactly 2 months since my last hema. appt and my platelets were at 119 which is amazing, so I've pretty much just left it in Gods hands. But now that I am finally settled, it's time to get back in the office and see where I am. I've been feeling very weak lately and my bruising and bleeding has been increasing so I'm thinking we are declining again.
Here are how my counts have been (June 2018-March 2019):
1st diagnosed (Dexa/Prednisone): 25-27-29-207-43-99-181-148-148-61
IVIG (Still on Pred.):160-165-166-148-122-115-78-88
(no steroids):71-87-72-76-87-81-68-56
Rituxan: 52-83-105-93-88-133-99-78-82-106-80-119
The last course of treatment that my hema. and me were talking about was either starting Promacta or Nplate once I fall close to 50 again. Does any one have any advise on either or maybe a different solution?
Sorry this is a lot in one post... Thank you!!!!!!