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Sudden increase of platelets without medication

GrouchoMarx
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I would never recommend an illness that choses people like me.

6 years 9 months ago #65540 by GrouchoMarx

Sudden increase of platelets without medication was created by GrouchoMarx

Dear all,
Since I shared the bad news i want to share also still good news.
on 3rd January i was 43000 with 15mg pred

today 10th january i was 74000 without medication for order prescription from 4th January...

Not even doctor could explain it....

Hal9000
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Give me all your platelets and nobody gets hurt

6 years 9 months ago #65544 by Hal9000

Replied by Hal9000 on topic Sudden increase of platelets without medication

That last Dex pulse did more for you than expected?

ITP Types and Treatments by HAL

GrouchoMarx
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I would never recommend an illness that choses people like me.

6 years 9 months ago #65545 by GrouchoMarx

Replied by GrouchoMarx on topic Sudden increase of platelets without medication

The last Dex pulse took place one month ago. After 0ne week I.was on 39.000. Last week i was on 43000 and today on 74000....
Maybe i can keep it like this and forget all meds..... crossing fingers.

Sandi
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Sandi Forum Moderator Diagnosed in 1998, currently in remission. Diagnosed with Lupus in 2006. Last Count - 344k - 6-9-18

6 years 8 months ago #65567 by Sandi

Replied by Sandi on topic Sudden increase of platelets without medication

That's great! The thing about ITP is that it's unpredictable. I've had counts go up with no explanation. We always assume that counts will drop if we don't treat but that isn't always the case.

GrouchoMarx
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I would never recommend an illness that choses people like me.

6 years 8 months ago - 6 years 8 months ago #65593 by GrouchoMarx

Replied by GrouchoMarx on topic Sudden increase of platelets without medication

Today 18th January my count dropped to 43000.
Still happy because according to my doctor I dont need medication. We are in a "wait and see" mode with tests every 10 to 15 days if no bleeding (I never had any bleeding anyways).
However, he couldnt explain why it wents up to 74.000 or dropped to 43000. Something must have caused it. It cant be magic and thats why I am not happy about the current research situation on ITP. I had a nice 74000 when I was on holidays in Spain and a 43000 back on my job to Estearn Europe. is it the polution? Was the cold I had before the 74000? was the Omeoprazol 40 mg i took until 3 January?
Well..... I hope the research interest in ITP increases to leave the middle ages medical approach because I feel like we can as well put a chicken leg over or doors to fight it...

6 years 8 months ago #65594 by

Replied by on topic Sudden increase of platelets without medication

GrouchoMarx wrote: Today 18th January my count dropped to 43000.
I feel like we can as well put a chicken leg over or doors to fight it...

hahaha I like that.

johnmerrick
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6 years 8 months ago #65601 by johnmerrick

Replied by johnmerrick on topic Sudden increase of platelets without medication

diet?

Sandi
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Sandi Forum Moderator Diagnosed in 1998, currently in remission. Diagnosed with Lupus in 2006. Last Count - 344k - 6-9-18

6 years 8 months ago #65609 by Sandi

Replied by Sandi on topic Sudden increase of platelets without medication

Groucho:
Platelet counts fluctuate constantly, and so do the antibodies that destroy them. Illnesses and medications can have an affect on platelets too, but a difference of 31k in a week or more isn't a surprising occurrence. Hopefully you go back up a bit from here.

The following user(s) said Thank You: GrouchoMarx

GrouchoMarx
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I would never recommend an illness that choses people like me.

6 years 8 months ago #65637 by GrouchoMarx

Replied by GrouchoMarx on topic Sudden increase of platelets without medication

I am not on diet but i try to eat less hidrats.

GrouchoMarx
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I would never recommend an illness that choses people like me.

6 years 8 months ago #65638 by GrouchoMarx

Replied by GrouchoMarx on topic Sudden increase of platelets without medication

Thanks for the support.

GrouchoMarx
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I would never recommend an illness that choses people like me.

6 years 8 months ago #65639 by GrouchoMarx

Replied by GrouchoMarx on topic Sudden increase of platelets without medication

55000 platelets today on January 28th...
I am happy I might have left behind those horrible corticoids that destoyed my life literally....
I want to resume playing soccer. The doctor told me after 70,000. Crossing fingers

GrouchoMarx
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I would never recommend an illness that choses people like me.

6 years 8 months ago #65640 by GrouchoMarx

Replied by GrouchoMarx on topic Sudden increase of platelets without medication

Sandi
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Sandi Forum Moderator Diagnosed in 1998, currently in remission. Diagnosed with Lupus in 2006. Last Count - 344k - 6-9-18

6 years 8 months ago #65649 by Sandi

Replied by Sandi on topic Sudden increase of platelets without medication

Good! Your counts are just bouncing around at a safe number for now.

GrouchoMarx
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I would never recommend an illness that choses people like me.

6 years 8 months ago #65662 by GrouchoMarx

Replied by GrouchoMarx on topic Sudden increase of platelets without medication

Crossing fingers.

GrouchoMarx
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I would never recommend an illness that choses people like me.

6 years 8 months ago #65663 by GrouchoMarx

Replied by GrouchoMarx on topic Sudden increase of platelets without medication

Crossing fingers

GrouchoMarx
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I would never recommend an illness that choses people like me.

6 years 8 months ago #65707 by GrouchoMarx

Replied by GrouchoMarx on topic Sudden increase of platelets without medication

Today 8th February, platelets count dropped to 39000..... crossing fingers to keep it over 30000. But the pattern is to go down unfortunately.
I was on weekend 2 weeks ago to the mountain and my platelets were 55000. I left Spain with 73000. Could it this environment be the one pushing down my platelets? Mmmmm

sillyman
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6 years 7 months ago #65971 by sillyman

Replied by sillyman on topic Sudden increase of platelets without medication

Keep eating and drinking whatever you ate and drank. I strongly believe natural remedies can cure us. All the best. Keep it up.

Vancouver40
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Received diagnosis of ITP in July of 2016 after going to emergency in Vancouver, BC, Canada and finding I had 3 platelets at that moment. Repeatedly had crashes every 3 to 6 months. In 2019, one crash & 2020, after an imminent crash, raised them naturally

4 years 9 months ago #70429 by Vancouver40

Replied by Vancouver40 on topic Sudden increase of platelets without medication

The following assisted me in naturally increasing my platelets several times this past year 2020:
-drinking the electrolyte beverage Pedialyte. I would drink 1 litre throughout the day. Perhaps even two bottles over two days. I was dehydrated regularly.
- taking Probiotic from Renew Life brand daily. 80 or 100 billion bacteria.
- taking Multi Mineral and Multi vitamin from brand TrueHope called EMPplus. It's a daily with the entire spectrum of Vitamins and minerals needed by the body.
- Vitamin D and K2 once a week. Which might explain better numbers when you were in Spain with all the sunshine exposure which is Vitamin D.
Hope some of these things that worked for me may be of assistance for you. Wishing you strong platelets!

The following user(s) said Thank You: Columbia09

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