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Signs of a Relapse

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6 years 9 months ago #65529 by beaky22
Signs of a Relapse was created by beaky22
I'm curious what signs/symptoms you experienced at the start of a relapse after being in remission. I've been in remission for 5 years, and I stopped having regular CBCs about 2 years ago after a consistent string of platelet counts in the 200s.
But recently, I've noticed more bruising on my legs - not those deep purple itp bruises, but more bruises none the less. And my current period is lasting a lot longer than normal. Plus, I just had a mole removed on my arm and I bled through the stitches today.
Basically - Am I hyper sensitive just because what I've been through with ITP in the past or are these similar warning signs you noticed during the start of a relapse?
  • Neve24
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  • Neve, 21, diagnosed in 2004 with ITP, relapsed 2013, relapsed 2017, chronic since then; last count, sept. 3rd, 2018: 4000 (on Imuran)
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6 years 9 months ago #65535 by Neve24
Replied by Neve24 on topic Signs of a Relapse
Personally, I do not notice anything until my counts crash to below 10k.. and I generally do not get worried if the bruises aren't bright blue (and if there's no petechiae). If your count is low it probably isn't under 60-70. Maybe just go for your annual health check up and request a cbc? good luck and keep us updated!
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6 years 9 months ago - 6 years 9 months ago #65539 by MelA
Replied by MelA on topic Signs of a Relapse
You should probably be having a yearly physical with full CBC done! I was in "remission" for a number of years [not a normal count though] and was having a CBC yearly - then one year I needed a tetanus booster & my count tanked, I had no symptoms at all just a feeling which turned out to be accurate.

Also the smartest thing anyone can do is:
When in doubt check it out!!
"Instead of wasting your time worrying about symptoms, just get it checked out" -Nieca Goldberg, MD
The following user(s) said Thank You: maria3132
  • Sandi
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  • Sandi Forum Moderator Diagnosed in 1998, currently in remission. Diagnosed with Lupus in 2006. Last Count - 344k - 6-9-18
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6 years 8 months ago #65611 by Sandi
Replied by Sandi on topic Signs of a Relapse
Of course bruising, bleeding and petechiae are signs of a relapse, but those can occur even at normal counts. I wouldn't worry about what the symptoms are....if you're worried, get a CBC.

I did that once too. I had over a year of good counts so I stopped going and stopped caring. I saw my GP one day and he suggested that I get a count done (a year and a half after I stopped getting CBC's). I tried to tell him I didn't want one but he insisted. Turned out that my counts were in the 30's. I have no idea how long they were down there; it didn't matter though since I had no symptoms. I had to start monitoring at that point though.
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The Platelet Disorder Support Association does not provide medical advice or endorse any medication, vitamins or herbs. The information contained herein is not intended nor implied to be a substitute for professional medical advice and is provided for educational purposes only. Always seek the advice of your physician or other qualified healthcare provider before starting any new treatment, discontinuing an existing treatment and to discuss any questions you may have regarding your unique medical condition.


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