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6 years 9 months ago #65490 by alisonp
Update was created by alisonp
Firstly, Happy Christmas and New Year to everyone - I hope you've all had a good one :)
Dougie had his first appointment since last Easter today. His count was 44, so we are very happy with that. He's had a few nosebleeds this last term but not on the scale that they were happening before. When he comes home next summer he will go back for a count and to see the consultant.
It's really nice for both him and us to have been able to put ITP on the back burner this last year or so. A count above 30 means that he is generally symptomless so he's just been getting on with student life at uni.
Wishing you all a great 2019,
Ali.
  • Sandi
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  • Sandi Forum Moderator Diagnosed in 1998, currently in remission. Diagnosed with Lupus in 2006. Last Count - 344k - 6-9-18
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6 years 9 months ago #65492 by Sandi
Replied by Sandi on topic Update
Hey Alison! We haven't heard from you in a long time! I'm glad that Doug is doing well - he's all grown up now!
  • Hal9000
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  • Give me all your platelets and nobody gets hurt
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6 years 9 months ago - 6 years 9 months ago #65523 by Hal9000
Replied by Hal9000 on topic Update
Alison, Merry Christmas and Happy New Year. Cheers to 2019 being an awesome year.

FWIW I've got Dougie listed as row type 3 in my PDSA notes. This is the same type as myself. I think I got ITP from Chickenpox when I was a toddler and have had lower counts since then. It was when I got around 45-50 years that the bruising became 'easy'. You probably know what I mean by that.
ITP Types and Treatments by HAL
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6 years 8 months ago #65576 by alisonp
Replied by alisonp on topic Update
Thanks Hal, I do know what you mean. Fingers and everything else crossed that might mean that he's got another 25 years of putting ITP on the back burner -.we'd all be very happy with that :silly:
  • Hal9000
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  • Give me all your platelets and nobody gets hurt
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6 years 8 months ago - 6 years 8 months ago #65582 by Hal9000
Replied by Hal9000 on topic Update
LOL, it's even worse. One can't stop progress. In 25 years they could have a cure for cancer, figured out the immune system, and have fixes for ITP. At the very least, Promacta will be off patent and will be dirt cheap. I only need the lowest dose of it to get by.
ITP Types and Treatments by HAL
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The Platelet Disorder Support Association does not provide medical advice or endorse any medication, vitamins or herbs. The information contained herein is not intended nor implied to be a substitute for professional medical advice and is provided for educational purposes only. Always seek the advice of your physician or other qualified healthcare provider before starting any new treatment, discontinuing an existing treatment and to discuss any questions you may have regarding your unique medical condition.


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