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Platelets at 4k

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7 years 1 month ago #64221 by candicefaye
Platelets at 4k was created by candicefaye
Hello. I'm a newbie here. I'm looking for anyone who can probably sponsor ivig or rituximab treatments in the philippines? I was diagnosed with itp in 1999. Sometimes I get to experience prolonged and very heavy bleeding which results to decreasing my hemoglobin and giving me transfusions. Most recent was last month. Also had platelets concentrate transfusions bit it only increased up to 6k and then went back to 4k after a couple of days. Currently I'm taking Revolade Eltrombopag and Azathioprine. My doc already tapered my Prednisone. A friend also suggested to take Usana as my multi vitamins. But my doc is suggesting the treatment that i mentioned above. It's too expensive. I can't afford it.
  • Sandi
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  • Sandi Forum Moderator Diagnosed in 1998, currently in remission. Diagnosed with Lupus in 2006. Last Count - 344k - 6-9-18
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7 years 1 month ago #64222 by Sandi
Replied by Sandi on topic Platelets at 4k
I'm really sorry to hear this. We don't personally sponsor any treatments; we're all patients too. Maybe you could contact the drug company? They will sometimes sponsor patients who cannot afford drugs.
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7 years 1 month ago #64223 by candicefaye
Replied by candicefaye on topic Platelets at 4k
Hi Sandi. Do you think I should try this kind of treatment too? I'm currently taking Eltrombopag. And I was thinking it could take a little while to take effect.
  • Sandi
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  • Sandi Forum Moderator Diagnosed in 1998, currently in remission. Diagnosed with Lupus in 2006. Last Count - 344k - 6-9-18
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7 years 1 month ago #64231 by Sandi
Replied by Sandi on topic Platelets at 4k
I don't know, Candice. Eltrombopag usually has a higher success rate than Rituxan does. IVIG is almost always temporary, like a few days or weeks. You're not having any response to Eltrombopag at all?
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The Platelet Disorder Support Association does not provide medical advice or endorse any medication, vitamins or herbs. The information contained herein is not intended nor implied to be a substitute for professional medical advice and is provided for educational purposes only. Always seek the advice of your physician or other qualified healthcare provider before starting any new treatment, discontinuing an existing treatment and to discuss any questions you may have regarding your unique medical condition.


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