Platelet Disorder Support Association

Join Us:

Become a Member

Support Us:

Make a Donation
    Remember Me     Forgot Login?   Sign up   •  Web site Help & Info
!!! DISCUSSION GROUP RULES !!!

1. You must be a registered website user in order to post and comment. Guests may read only.
2. Be kind and helpful, not rude and cynical.
3. Don't advertise or promote anything. You will be banned from the group.
4. Report problems to the moderators. THANK YOU!

Splenectomy and increased stroke risk

  • libelder
  • Topic Author
  • Offline
  • Take a look on the Amgen site, I'm their "poster girl", if you will, for Nplate. It's kind of a nice video, probably tells my story as well as I could here.
More
7 years 6 months ago #63070 by libelder
Splenectomy and increased stroke risk was created by libelder
So, in the Dr. Bussell talk about fostamatinib he mentions the increased risk of stroke if you've had a splenectomy... Huh?!!? I'm looking for more info., does anyone know anything? I had mine out 31 years ago as yet another epic ITP fail, but with stroke common in my family now I'm concerned. Any advice? Here's the link to his presentation which I'm encouraged by, but this stroke info is new to me.

m.youtube.com/watch?v=DBJ5SswU8tI
More
7 years 6 months ago #63075 by CindyL
Replied by CindyL on topic Splenectomy and increased stroke risk
I had mine out in 2006 and my mom had a stroke 4 years ago. I was never worried about the possibility of having a stroke. When I was looking into my splenectomy, I didn't find anything about a relation between the two. After the surgery, I think something was posted on here about the possibility. Still doesn't make me sorry I had it, and I still don't think about having a stroke. I'm more worried about my mother having another one.
  • Sandi
  • Offline
  • Sandi Forum Moderator Diagnosed in 1998, currently in remission. Diagnosed with Lupus in 2006. Last Count - 344k - 6-9-18
More
7 years 6 months ago - 7 years 6 months ago #63078 by Sandi
Replied by Sandi on topic Splenectomy and increased stroke risk
Yes, it's true, Lib. It's a risk even without the TPO's.

www.onclive.com/insights-archive/immune-thrombocytopenia/risk-of-thrombosis-in-patients-with-itp

www.bloodjournal.org/content/121/23/4782?sso-checked=true
Platelet Disorder Support Association

Donate

About

Stay Informed

Follow Us

IMPORTANT!

The Platelet Disorder Support Association does not provide medical advice or endorse any medication, vitamins or herbs. The information contained herein is not intended nor implied to be a substitute for professional medical advice and is provided for educational purposes only. Always seek the advice of your physician or other qualified healthcare provider before starting any new treatment, discontinuing an existing treatment and to discuss any questions you may have regarding your unique medical condition.


Platelet Disorder Support Association
8751 Brecksville Road, Suite 150, Cleveland, Ohio 44141
Phone: 1-87-PLATELET | 877-528-3538 (toll free) | or 440-746-9003
E-mail: pdsa@pdsa.org


© Copyright 1997 - 2025, Platelet Disorder Support Association. All rights reserved.
The Platelet Disorder Support Association is a 501(c)3 organization and donations are tax deductible to the fullest extent allowed by law.


Privacy Policy and Terms of Use