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How low before hospitalization?

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7 years 7 months ago #62795 by packh1@yahoo.com
How low before hospitalization? was created by packh1@yahoo.com
Curious to hear at what point are platelets so low that hospitalization is necessary? My lowest has been 4K and no hospitalization.
Want to avoid an admission as long as I can.
tricia50
  • D.Mann
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  • Diagnosed October 2016 Steroids, IVIG, Rituxin, Promacta, Spleen removed, Rituxin again. Currently weaning off Promacta and Prednisone.
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7 years 7 months ago #62797 by D.Mann
Replied by D.Mann on topic How low before hospitalization?
I only went to the hospital when I had active bleeding. Some doctors want you to go in with low counts. Generally it would be to to get IVIG and monitor counts closely.
The following user(s) said Thank You: packh1@yahoo.com
  • Sandi
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  • Sandi Forum Moderator Diagnosed in 1998, currently in remission. Diagnosed with Lupus in 2006. Last Count - 344k - 6-9-18
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7 years 7 months ago - 7 years 7 months ago #62798 by Sandi
Replied by Sandi on topic How low before hospitalization?
That depends on the doctor and the patient. There isn't a set number. If there is active bleeding, that would be a reason to be hospitalized but the count itself is not a reason. I was working with counts under 5k, was never hospitalized. Some doctors are very cautious and hospitalize based on counts, but it's not necessary.

At 4k, you're already about as low as you can go. Anything under 5k is considered to be pretty much the same number. If you took another sample an hour later, that number could change to 1k or 7k. Platelets fluctuate constantly and the analyzers have a margin of error.
The following user(s) said Thank You: packh1@yahoo.com
  • mrsb04
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  • ITP since 2014. Retired nurse. My belief is empower patients to be involved as much as possible in their care. Read, read, read & ALWAYS question medics about the evidence base they use.
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7 years 7 months ago - 7 years 7 months ago #62802 by mrsb04
Replied by mrsb04 on topic How low before hospitalization?
I went to GP covered in bruises from a minor gardening mishap.
FBC sent to lab. Platelet count came back at 12. I was hospitalised for 1 night.
After a gazillion more blood tests and 45mg of Pred my count stayed at 12 so I was discharged the next morning and have been treated as an outpatient ever since even when my count dropped to 2 with blood dripping from my nose.
My haemo adopts a treat the symptoms not the count approach which suits me.
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7 years 7 months ago #62804 by packh1@yahoo.com
Replied by packh1@yahoo.com on topic How low before hospitalization?
Thanks.I agree with you.At 4 I had some bleeding but was treated with decadron. and they rose.I believe I would know if I was in a dangerous position.
tricia50
  • EmilyM
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  • Wife, mom of 2 w/ 1 on the way & full time employee. Latest count: 76 - 2/14/18
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7 years 7 months ago #62806 by EmilyM
Replied by EmilyM on topic How low before hospitalization?
When I dropped below 5k I was called and told to come back immediately to start IVIG treatment. I am in a larger city with a Cancer Center that I went to each day for 8hrs for 3 days. There wasn't a need for hospitalization with no bleeding and the Cancer Center offering the IVIG.
The following user(s) said Thank You: packh1@yahoo.com
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7 years 6 months ago - 7 years 6 months ago #62861 by kae0603
Replied by kae0603 on topic How low before hospitalization?
i was sent when they got to 7k. She was more worried they would keep dropping because we have been following them weekly and I was have 50k drops a week (after high from Dex) . I was at my check up appt. she tested again there and I was sent to the hospital from there. 4 days. IVIG then first round of Rituxan then the other 3 outpatient. So far so good 2 months out!
The next morning before treatment I was down to 3k so likely she made the right decision.
The following user(s) said Thank You: packh1@yahoo.com
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7 years 6 months ago #62863 by packh1@yahoo.com
Replied by packh1@yahoo.com on topic How low before hospitalization?
Good luck with Rituxin.I had the same as you IVIG in hospital ,Rituxin- four infusions.I had an 8 year remission which ended this past Oct..
I am told I might not be able to have Rituxinagain due to a problem with a Heptitis test being inconclusive.

Perhaps you will have an even longer remission!
tricia50
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7 years 6 months ago #62869 by kae0603
Replied by kae0603 on topic How low before hospitalization?
That is my hope as well. Even if it's 8 years I will be thrilled. I know many it doesn't work well for but so far for me it has. I would rather have a horrible 4-6 weeks and forget about it then do weekly shots or take pills. I can handle quarterly blood draws.
The following user(s) said Thank You: packh1@yahoo.com
  • Hal9000
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  • Give me all your platelets and nobody gets hurt
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7 years 6 months ago #62871 by Hal9000
Replied by Hal9000 on topic How low before hospitalization?
kae, good to hear that you are doing well.
Can I put you down in my notes as a row 1 remission (in my treatments table) with Rituxan? Sound about right? I've got that you responded well to Dex. IVIG, not so clear. Sounds like you took it starting with Rituxan. Exactly how long your IVIG response is/was isn't clear. As the IVIG wore off, the Rituxan kicked in?
ITP Types and Treatments by HAL
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