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Living with low platelets

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8 years 4 weeks ago #60607 by DUHEIL
Living with low platelets was created by DUHEIL
Are there anyone out there who have survived with platelets in the 15 to 30 range for a long time??
  • Sandi
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  • Sandi Forum Moderator Diagnosed in 1998, currently in remission. Diagnosed with Lupus in 2006. Last Count - 344k - 6-9-18
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8 years 4 weeks ago #60612 by Sandi
Replied by Sandi on topic Living with low platelets
Yes. I once went for months with counts in the 20's and only treated when they dropped below 10k. Many people live with counts in that range. If symptoms are minimal, it's survivable.
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8 years 3 weeks ago #60617 by DUHEIL
Replied by DUHEIL on topic Living with low platelets
Thanks!! I needed a little encouragement.
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8 years 3 weeks ago #60619 by tj1989
Replied by tj1989 on topic Living with low platelets
My son was 15k when he first diagnosed last August. This year, he is 2k more every time he does a CBC, and last lab 29K without treatment. We just need to be careful when he has nose bleeding or lose a tooth.
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8 years 3 weeks ago #60624 by poseymint
Replied by poseymint on topic Living with low platelets
Yes, I've had platelets at 10-14K for 2 years and was fine. But luckily I didn't have any accidents during that time. Then for other periods of time my plates have been 6-10K. My lowest was 1K, many times I've been under 5K. That said, when they got below 10K I would always take prednisone to boost them up again. I respond quickly to prednisone and always carry it with me.

If my counts would stay above 15K I wouldn't treat, but then everyone is different. I don't tend to bleed or bruise much. Other people might be having a serious emergency at low numbers. Some people on this forum have had brain bleeds, so theres a risk- but the treatments are also risky. Part of the ITP journey is getting to know our own unique bodies and then make the best decisions for ourselves. good luck!
  • CindyAnn
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  • Diagnosed Jan 10, 2008. Rituxan treatment in May 2009. Treated with Prednisone off and on until 08/23/17 - 12.5mg Promacta as of 10/22/17
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8 years 3 weeks ago #60631 by CindyAnn
Replied by CindyAnn on topic Living with low platelets
As long as my symptoms are minor and my counts are above 20k - I would/will not treat. - once you get to know your body/ITP you too will be more comfortable and in charge of when and how to treat.
  • SusanMichelle28
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  • I was diagnosed with ITP in March 2012. I've tried almost every treatment under the sun. Nothing really works without creating a new issue. Just taking it all one day at a time!
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8 years 3 weeks ago #60715 by SusanMichelle28
Replied by SusanMichelle28 on topic Living with low platelets
I have hovered around 10-20 for the last year or so. I'm not a bleeder and I rarely develop bruising without trauma. The only thing I have to deal with is the fatigue. I've learned to be more graceful, that's for sure.
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8 years 2 weeks ago #60788 by meredithjane
Replied by meredithjane on topic Living with low platelets
Coming up 13 years, have hovered around 30, except after IVIG treatment.
Cope OK, bruise readily and tire regularly. BUT that's probably due to age . . .
mj
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8 years 2 weeks ago #60805 by Moe1327
Replied by Moe1327 on topic Living with low platelets
I've been recently diagnosed with ITP. I've been going thru IVIG treatments. I don't really feel any different or have symptoms or just not aware if there are symptoms. I do bruise easily and sometimes feel very tired. But not sure if fatigue is a symptom.
  • Kelirae24
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  • I'm 31 years old and a mom to two awesome little boys, I was diagnosed with itp when I was 17 years old. With no treatment my counts are 0-5 I am currently on nplate and I had a splenectomy in 2004
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8 years 2 weeks ago #60883 by Kelirae24
Replied by Kelirae24 on topic Living with low platelets
Yeah in 2010 nothing would get my count above 5 for months I think it was about 6 months then nplate was introduced
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The Platelet Disorder Support Association does not provide medical advice or endorse any medication, vitamins or herbs. The information contained herein is not intended nor implied to be a substitute for professional medical advice and is provided for educational purposes only. Always seek the advice of your physician or other qualified healthcare provider before starting any new treatment, discontinuing an existing treatment and to discuss any questions you may have regarding your unique medical condition.


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