maryspott wrote: Hi,
I have not posted in a "long" time, due to many other health problems, ITP not one of them. Now, on top of them my counts are slowly dropping again. Not in danger range or anything, but it got me thinking back to what my hemo. doctor said to me when he removed my spleen "this will probably last about 15 years". My normal counts were 1000, I spent more time in the hospital, then at home. My white count is still high, and my blood work is still off, could be because I don't have a spleen. Its been 8 years, and "yes" I am sick all the time, but it is better that the constant steroids, and other IV treatments I had to endure, that lasted 2 days, and caused me to puke for 4 days.
I just wondered if anyone else had any experience with this kind of situation in the long term. I have read the studies, but they are studies....
Hi Mary,
I had a splenectomy done as a child (that's what they did back then) and I'm still dealing with my ITP 32 or so years later. Post-splenectomy, my white cell counts have always been kinda random and wacky. That is to be expected of anyone post-splenectomy, according to my doctor. However, despite the wonky white cell counts, I am rarely sick. I think that's just one of those individual variance things. With all of the options available now (I'm currently on Promacta), I would never go back to steroids either.
Hopefully your counts will stay high enough that you won't require any treatment for the immediate future.
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