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How long have you had ITP for?

  • chantalleptos
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  • I was diagnosed at just three years old and have lived with ITP for 26 years. Doctors have often referred to me as the "exotic one" because they believe my case and experience with ITP differs from most. I am married and have a beautiful baby boy.
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8 years 3 months ago #59519 by chantalleptos
How long have you had ITP for? was created by chantalleptos
I've had ITP for 26 years, am almost thirty years old and have a beautiful baby boy.

How long have you had ITP for?
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8 years 3 months ago #59524 by CindyL
Replied by CindyL on topic How long have you had ITP for?
I was diagnosed in 2004 at the age of 43.
The following user(s) said Thank You: chantalleptos
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8 years 3 months ago #59525 by momto3boys
Replied by momto3boys on topic How long have you had ITP for?
I've had ITP for 34 years now (and still dealing with it!). Diagnosed somewhere around age 8 and just turned 42. I've got 3 boys ages 15, 12, 10 (all ITP pregnancies as well). Nice to see you here :)
The following user(s) said Thank You: chantalleptos
  • Kelirae24
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  • I'm 31 years old and a mom to two awesome little boys, I was diagnosed with itp when I was 17 years old. With no treatment my counts are 0-5 I am currently on nplate and I had a splenectomy in 2004
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8 years 3 months ago #59557 by Kelirae24
Replied by Kelirae24 on topic How long have you had ITP for?
I was diagnosed at 17 and now 31 and have two beautiful boys that luckily didn't get it from me so 14 years
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8 years 3 months ago #59564 by GhostRider
Replied by GhostRider on topic How long have you had ITP for?
I was diagnosed when 17 after having knee surgery. Should of been a day op but was in for 5 days due to bleeding.

I'm now 37 and had a splenectomy a month ago due to my spleen becoming enlarged.

It was 25cm in length and was basically crushing various organs such as my stomach and small intestines as well as screwing around with my blood as well making my and life very difficult.

Due to me also having CVID and having weekly IVIG Infusions having my spleen removed won't really effect me like most people so it was a no brainer having it removed.

Unfortunately due to the size they had to perform open surgery to remove my spleen. They also had to have me back in surgery a few days later because of internal bleeding.

Hopefully with my spleen being removed my ITP will be in remission, only time will tell
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8 years 3 months ago #59565 by Christine
Replied by Christine on topic How long have you had ITP for?
45 years . Back in the day when spleen removal and prednisone was the only answer - thankfully things have changed.
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8 years 3 months ago #59683 by Winnifred
Replied by Winnifred on topic How long have you had ITP for?
20 years diagnosed at 29.