Good morning all. I hope you are doing well. It has been a while.
Since my last post I have done three rounds of Rituximab. I am back to my regular replacement dose of prednisone 7.5 mg, for Addison's Disease and my platelets hover from 414, 399, and this week 422. So it appears the infusions are working.
I was unable to do my last infusion on Jan 31 due to a sinus infection. I am scheduled to have it on Feb 14.
But I am very unwell. I saw my rheumatologist this past Wednesday and was told I am in a fibro/lupus flare.
It sure feels like it. But I am confused as I thought that being the platelets are up it meant that my immune system would be shut down too and therefore could expect my lupus/connective tissue issues/flares would be as well?
Regardless at this point I am thinking should I be taking the last infusion? It's a bad flare.
I was given some muscle relaxant, Baclofen and Meloxicam anti-inflammatory, that so far has not improved anything.
I have another unusual symptom as well, itching that is driving me crazy.
I just feel I need to hold off the Rituximab or even cancel. I have not seen my hemo since October, usually only hearing from her through her reception by phone which is also strange to me.
Your thoughts much appreciated. Sandy Too