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Update on latest session with consultant

  • mrsb04
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  • ITP since 2014. Retired nurse. My belief is empower patients to be involved as much as possible in their care. Read, read, read & ALWAYS question medics about the evidence base they use.
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8 years 9 months ago - 8 years 9 months ago #57681 by mrsb04
Update on latest session with consultant was created by mrsb04
Saw consultant today.
Count is 14 on 14mg prednisolone so can't see that is doing much good and have told her that after 2.5 years on the wretched drug I want off it.
Am going to taper by 1mg a week and have weekly bloods. Promacta will probably be the next step if count drops too low.
  • Sandi
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  • Sandi Forum Moderator Diagnosed in 1998, currently in remission. Diagnosed with Lupus in 2006. Last Count - 344k - 6-9-18
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8 years 9 months ago #57689 by Sandi
Replied by Sandi on topic Update on latest session with consultant
Good luck. I hope the taper goes well. I'm trying to taper from 15 mg's to 10 mg's after 12 years on Prednisone. I'm at 13 mg's after four months. I really want to do this because my skin rips if my dogs touch me. Not sure if that will improve or not.
  • Hal9000
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  • Give me all your platelets and nobody gets hurt
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8 years 9 months ago #57694 by Hal9000
Replied by Hal9000 on topic Update on latest session with consultant
Anne, refresh my memory. Did you once take NPlate but lost response while tapering from it? Is that now the reason your going to Promacta?

You've probably thought this out. You want to be well off of Pred when you start Promacta, or it doesn't matter, or ?
ITP Types and Treatments by HAL
  • mrsb04
  • Topic Author
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  • ITP since 2014. Retired nurse. My belief is empower patients to be involved as much as possible in their care. Read, read, read & ALWAYS question medics about the evidence base they use.
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8 years 9 months ago #57700 by mrsb04
Replied by mrsb04 on topic Update on latest session with consultant
No I didn't taper N plate it just stopped working without any warning. I want to be off Pred because taking is worse than having low platelets. I have osteoporosis therefore a dose above 5mg a day is contra indicated. The long term side effects of steroids are endless and I want a decent night's sleep. I've tapered before whilst on N plate and started to feel human again once I got down to about 6 mg a day so that must be my normal physiological dose.
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The Platelet Disorder Support Association does not provide medical advice or endorse any medication, vitamins or herbs. The information contained herein is not intended nor implied to be a substitute for professional medical advice and is provided for educational purposes only. Always seek the advice of your physician or other qualified healthcare provider before starting any new treatment, discontinuing an existing treatment and to discuss any questions you may have regarding your unique medical condition.


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