Platelet Disorder Support Association

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Anyone heard of this or know any more info?

  • Kelirae24
  • Topic Author
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  • I'm 31 years old and a mom to two awesome little boys, I was diagnosed with itp when I was 17 years old. With no treatment my counts are 0-5 I am currently on nplate and I had a splenectomy in 2004
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9 years 2 months ago #55202 by Kelirae24
Anyone heard of this or know any more info? was created by Kelirae24
?
  • Sandi
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  • Sandi Forum Moderator Diagnosed in 1998, currently in remission. Diagnosed with Lupus in 2006. Last Count - 344k - 6-9-18
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9 years 2 months ago #55203 by Sandi
Replied by Sandi on topic Anyone heard of this or know any more info?
Hmmm. No, I have not heard of that. Interesting.
  • CindyAnn
  • Offline
  • Diagnosed Jan 10, 2008. Rituxan treatment in May 2009. Treated with Prednisone off and on until 08/23/17 - 12.5mg Promacta as of 10/22/17
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9 years 2 months ago #55209 by CindyAnn
Replied by CindyAnn on topic Anyone heard of this or know any more info?
Jeff just posted the information with a link to the study - It looked very interesting - I would be willing to be a lab rat for this one :cheer:
  • mrsb04
  • Offline
  • ITP since 2014. Retired nurse. My belief is empower patients to be involved as much as possible in their care. Read, read, read & ALWAYS question medics about the evidence base they use.
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9 years 2 months ago #55210 by mrsb04
Replied by mrsb04 on topic Anyone heard of this or know any more info?
So would I Cindy Ann
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The Platelet Disorder Support Association does not provide medical advice or endorse any medication, vitamins or herbs. The information contained herein is not intended nor implied to be a substitute for professional medical advice and is provided for educational purposes only. Always seek the advice of your physician or other qualified healthcare provider before starting any new treatment, discontinuing an existing treatment and to discuss any questions you may have regarding your unique medical condition.


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