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Relapsed for second time.

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9 years 2 months ago #55130 by Dori
Relapsed for second time. was created by Dori
The first time I found out I had ITP was in Sept. of 2011. I was at 12,000. I was treated with Prednisone. I relapsed in July of 2012. Lots more Prednisone. I have now relapsed a second time a few weeks ago. This time my numbers were at 89,000/76,000/70,000. We are watchfully waiting. I will be checked each week & see what happens. I do not want treatment unless I fall really low. I have read that low platelets do not cause tiredness, but every time I drop under normal, i feel extremely tired. It is all I can do to go to work each day then come home & collapse on the sofa. Do most of you feel normal in your energy level? I am diabetic, so I don't have an abundance of energy anymore anyway, but it gets worse when my platelets drop. Does anyone know how typical it is to keep having relapses, & do most people keep having them?
  • Sandi
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  • Sandi Forum Moderator Diagnosed in 1998, currently in remission. Diagnosed with Lupus in 2006. Last Count - 344k - 6-9-18
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9 years 2 months ago #55131 by Sandi
Replied by Sandi on topic Relapsed for second time.
Dori, yes, relapses are typical with ITP. If you can get a few years of remission in between relapses, you're doing good. Your counts are still at a safe level and it's possible they could go back up. Counts sometimes drop temporarily, so there is hope. I wish you the best and hope that you don't have to treat. Keep us updated!
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9 years 2 months ago #55132 by Dori
Replied by Dori on topic Relapsed for second time.
Thank you Sandi. You are a wealth of information. I enjoy reading what you have to say to people. Thanks & have a Blessed day. :)
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The Platelet Disorder Support Association does not provide medical advice or endorse any medication, vitamins or herbs. The information contained herein is not intended nor implied to be a substitute for professional medical advice and is provided for educational purposes only. Always seek the advice of your physician or other qualified healthcare provider before starting any new treatment, discontinuing an existing treatment and to discuss any questions you may have regarding your unique medical condition.


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