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Agitated

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9 years 4 months ago #54485 by amariec10
Agitated was created by amariec10
Anytime I try to talk to my friends or even family it seems like they get sick and tried of me trying to talk about my condition. Some even accuse me of being paranoid and a hypochondriac.
  • Sandi
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  • Sandi Forum Moderator Diagnosed in 1998, currently in remission. Diagnosed with Lupus in 2006. Last Count - 344k - 6-9-18
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9 years 4 months ago - 9 years 4 months ago #54487 by Sandi
Replied by Sandi on topic Agitated
Well, it's possible that it was an acute, one time thing for you and it may never happen again. At this point, it doesn't seem to be chronic. Do you worry about it often? Sometimes counts drop if someone has a virus and in that case, it may not really be ITP. It might have been a one time, isolated case of thrombocytopenia. How long did you treat and what did you treat with back then?
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9 years 4 months ago #54492 by ananta
Replied by ananta on topic Agitated
Amariec,
I think a lot of us are here to talk to each other, cause all of our friends don't want to hear about it anymore!

It is natural for a person to want to "Tell their story" and it is therapeutic too! Studies have shown the medical benefits of storytelling. It is how we make sense of our lives. Unfortunately people who are not sick, do not realize this.

Here are two articles about this

well.blogs.nytimes.com/2011/02/10/healing-through-storytelling/?_r=0

www.nytimes.com/2011/02/10/health/views/10chen.html?version=meter+at+1&module=meter-Links&pgtype=Blogs&contentId=&mediaId=%25%25ADID%25%25&referrer=https%3A%2F%2Fwww.google.com%2F&priority=true&action=click&contentCollection=meter-links-click

Tell us your story! We got lots of interested listeners! We will tell you if our experience was the same or different. And what strategies we used to get through the same stuff you are dealing with. And we will be sharing our story with you.
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9 years 4 months ago #54496 by Aoi
Replied by Aoi on topic Agitated
Agreed, Ananta. As the poet Muriel Rukeyser said: "The universe is made of stories, not of atoms."

However, there is also the Just World Fallacy, which shows that people tend to blame the victims of misfortune when something goes wrong. So in a sense, family and friends may be trying to protect the chronically ill from this fallacy by telling us to stop talking about it.

I'm a member of this group so I can learn and share. I've heard the paranoid and hypochondriac speeches from family and friends, though it turns out I have major medical issues that require ongoing care. It's just that outside the support groups I'm involved in, no one wants to hear much about it.