Platelet Disorder Support Association

Join Us:

Become a Member

Support Us:

Make a Donation
    Remember Me     Forgot Login?   Sign up   •  Web site Help & Info
!!! DISCUSSION GROUP RULES !!!

1. You must be a registered website user in order to post and comment. Guests may read only.
2. Be kind and helpful, not rude and cynical.
3. Don't advertise or promote anything. You will be banned from the group.
4. Report problems to the moderators. THANK YOU!

ITP with Mesenteric Vein Thrombosis

More
9 years 11 months ago #51824 by bjones
ITP with Mesenteric Vein Thrombosis was created by bjones
Hello. I am an adult male diagnosed with ITP 15 years ago (in my 40's), recently treated with Rituxan. In the last couple of years I have also been diagnosed with Mesenteric Vein Thrombosis (Clotting) and am also on blood thinners.

Is there anyone who has a similar situation?

Thank you, Bill J.
More
9 years 11 months ago #51825 by Ann
Replied by Ann on topic ITP with Mesenteric Vein Thrombosis
Have you been tested for APS (Antiphospholipid Syndrome) a clotting disorder which often goes along with ITP? How are your platelets now?
More
9 years 11 months ago #51826 by bjones
Replied by bjones on topic ITP with Mesenteric Vein Thrombosis
My clotting has been in my digestive system only (Portal vein etc.). My platelets are currently fluctuating and I was treated with Rituxan in Aug./'15 and IVIG 3 weeks ago when the plates were at 8. I will ask my hemo doctor about that syndrome.

Thank you,

Bill
  • Sandi
  • Offline
  • Sandi Forum Moderator Diagnosed in 1998, currently in remission. Diagnosed with Lupus in 2006. Last Count - 344k - 6-9-18
More
9 years 11 months ago #51827 by Sandi
Replied by Sandi on topic ITP with Mesenteric Vein Thrombosis
There have been people here who have APS and have been on blood thinners while battling ITP. It can be a tricky thing to balance. I've read articles that state that at least 33% of ITP patients also have APA's (Antiphospholipid Antibodies). I have had the antibodies, but have no experienced a clot. The clots can occur anywhere in the body. It is diagnosed with a blood test.
The following user(s) said Thank You: bjones
  • Sandi
  • Offline
  • Sandi Forum Moderator Diagnosed in 1998, currently in remission. Diagnosed with Lupus in 2006. Last Count - 344k - 6-9-18
More
9 years 11 months ago #51828 by Sandi
Replied by Sandi on topic ITP with Mesenteric Vein Thrombosis
Here are some posts:

pdsa.org/forum-sp-534/21-antiphospholipid-syndrome.html
  • Sandi
  • Offline
  • Sandi Forum Moderator Diagnosed in 1998, currently in remission. Diagnosed with Lupus in 2006. Last Count - 344k - 6-9-18
More
9 years 11 months ago #51830 by Sandi
Replied by Sandi on topic ITP with Mesenteric Vein Thrombosis
I was just wondering....have you had a splenectomy? Portal thrombosis is known to occur following splenectomies.
More
9 years 11 months ago #51831 by bjones
Replied by bjones on topic ITP with Mesenteric Vein Thrombosis
Yes, 14 years ago.
More
9 years 11 months ago #51832 by Ann
Replied by Ann on topic ITP with Mesenteric Vein Thrombosis
I just thought of that too. We've had others here have portal vein thrombosis after splenectomy.

www.ncbi.nlm.nih.gov/pubmed/18556406
The following user(s) said Thank You: bjones
Platelet Disorder Support Association

Donate

About

Stay Informed

Follow Us

IMPORTANT!

The Platelet Disorder Support Association does not provide medical advice or endorse any medication, vitamins or herbs. The information contained herein is not intended nor implied to be a substitute for professional medical advice and is provided for educational purposes only. Always seek the advice of your physician or other qualified healthcare provider before starting any new treatment, discontinuing an existing treatment and to discuss any questions you may have regarding your unique medical condition.


Platelet Disorder Support Association
8751 Brecksville Road, Suite 150, Cleveland, Ohio 44141
Phone: 1-87-PLATELET | 877-528-3538 (toll free) | or 440-746-9003
E-mail: pdsa@pdsa.org


© Copyright 1997 - 2025, Platelet Disorder Support Association. All rights reserved.
The Platelet Disorder Support Association is a 501(c)3 organization and donations are tax deductible to the fullest extent allowed by law.


Privacy Policy and Terms of Use