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Newly discovered ITP

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10 years 3 weeks ago #51158 by vanithabethu
Newly discovered ITP was created by vanithabethu
hi all,
Any one help me out Please.. Long story short.. 6 months back doctor found my platelets counts drop .
During that time I am pregnant. They gave the prednisone, IVIG and managed the counts. Recently C section suddenly had a pre mature baby. After delivery again my platelets going to dropping 7000 only. my hematologist gave the infusion platelets and next day gave the NPlatelet injection.
After one week checked the count then again dropped below 10000. Same day 2nd injection gave it to me. After 6thday today he checked it dropped again 25000.He is saying one more injection will give next 2 days. I am worrying about my situation please help me some information…
I never have this platelet problem before pregnancy. I am living in Dallas, texas.. if any one know better doctor or detail information please.
please excuse brevity and spelling
Thanks
Vanita
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10 years 3 weeks ago #51161 by Ann
Replied by Ann on topic Newly discovered ITP
From what you say there, your count hasn't dropped again, it's actually gone up from 10 to 25 which is really good and just what you'd expect from Nplate. The idea with Nplate is to keep the count around 50 (50,000) so you are nearly there. It's usual to go up and down a bit with Nplate so don't worry if it takes a while to get more stable. If your doctor doesn't understand that everything is going well then you may need to find another doctor who is more experienced with treating ITP.

I hope your baby is doing well, don't worry about ITP and enjoy your baby.
  • Sandi
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  • Sandi Forum Moderator Diagnosed in 1998, currently in remission. Diagnosed with Lupus in 2006. Last Count - 344k - 6-9-18
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10 years 3 weeks ago #51168 by Sandi
Replied by Sandi on topic Newly discovered ITP
It can take time to get stable on N-Plate and it is normal to drop right before the next scheduled injection. A few injections of N-Plate will not usually keep platelets up long-term and you need to keep getting the shot to keep counts in a safe range (over 30k). I hope he is not planning to stop N-Plate after only a few weeks. Sometimes the dose needs to be raised to get a better response.
The following user(s) said Thank You: vanithabethu
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10 years 3 weeks ago #51172 by vanithabethu
Replied by vanithabethu on topic Newly discovered ITP
Thank you for your reply.. I will see this friday have appointment....
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10 years 3 weeks ago #51173 by vanithabethu
Replied by vanithabethu on topic Newly discovered ITP
Thank you for your reply...
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The Platelet Disorder Support Association does not provide medical advice or endorse any medication, vitamins or herbs. The information contained herein is not intended nor implied to be a substitute for professional medical advice and is provided for educational purposes only. Always seek the advice of your physician or other qualified healthcare provider before starting any new treatment, discontinuing an existing treatment and to discuss any questions you may have regarding your unique medical condition.


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