Platelet Disorder Support Association

Join Us:

Become a Member

Support Us:

Make a Donation
    Remember Me     Forgot Login?   Sign up   •  Web site Help & Info
!!! DISCUSSION GROUP RULES !!!

1. You must be a registered website user in order to post and comment. Guests may read only.
2. Be kind and helpful, not rude and cynical.
3. Don't advertise or promote anything. You will be banned from the group.
4. Report problems to the moderators. THANK YOU!

Advice Needed: How to know when to take notice

More
10 years 1 month ago - 10 years 1 month ago #51043 by Clarissajs
Advice Needed: How to know when to take notice was created by Clarissajs
Hi everyone. I'm new to this community and have had ITP since 2007. The lowest my numbers have become are 20K and they live around 58-65K. Reading other threads it seems that isn't all that severe. I get a lot of bruises, get really tired and only mild rash. My PCP doesn't really think I need to do regular checks. Is there something I should be on the look out for so I don't get surprised if my numbers suddenly plummet? Each time its been a surprise.
10 years 1 month ago #51048 by
Replied by on topic Advice Needed: How to know when to take notice
Believe me you will know - it could just be a "feeling"

Back in 2002 I had a "feeling" my count was down even though I had no symptoms whatsoever, none. Well my count was low and it kept dropping - refused prednisone and had 1 WinRho IV.

I think if you want to have a count done your PCP should allow it - I'm on an every 3-4 month schedule now. But I can have a count done any time I want, I just email her and ask. Talk to your PCP about it.
  • Sandi
  • Offline
  • Sandi Forum Moderator Diagnosed in 1998, currently in remission. Diagnosed with Lupus in 2006. Last Count - 344k - 6-9-18
More
10 years 1 month ago #51053 by Sandi
Replied by Sandi on topic Advice Needed: How to know when to take notice
Some signs to look for are bleeding gums, increasing petechiae, large, dark spontaneous bruises and blood blisters in the mouth.

I'm impressed that your PCP is okay with counts of 20k. Most would pitch a fit. It's good that you've not had to treat; that is the hard part.
Platelet Disorder Support Association

Donate

About

Stay Informed

Follow Us

IMPORTANT!

The Platelet Disorder Support Association does not provide medical advice or endorse any medication, vitamins or herbs. The information contained herein is not intended nor implied to be a substitute for professional medical advice and is provided for educational purposes only. Always seek the advice of your physician or other qualified healthcare provider before starting any new treatment, discontinuing an existing treatment and to discuss any questions you may have regarding your unique medical condition.


Platelet Disorder Support Association
8751 Brecksville Road, Suite 150, Cleveland, Ohio 44141
Phone: 1-87-PLATELET | 877-528-3538 (toll free) | or 440-746-9003
E-mail: pdsa@pdsa.org


© Copyright 1997 - 2025, Platelet Disorder Support Association. All rights reserved.
The Platelet Disorder Support Association is a 501(c)3 organization and donations are tax deductible to the fullest extent allowed by law.


Privacy Policy and Terms of Use