Platelet Disorder Support Association

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ITP- full of questions and thankful for forum

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10 years 2 months ago #50563 by Sophie1
ITP- full of questions and thankful for forum was created by Sophie1
Hello there, this is Rene again sending my best wishes to everyone in the forum.
Thank you to all of you who have been sending me messages and answering my questions.
I am so thankful that I have the support that I've been looking for. Just want to share my latest update with those who were asking. I am currently taking Promacta every other day and my counts seem to be going up. This is good news however, I am concerned with what the next step will be for me. I am refusing a splenectomy after much sound advice. Great points may I add. The way I see it is that if I have to take Promacta for as long as I can. I guess I will have to. Does any one out there know if taking 50 mg every other day is part of reducing my doses and not starting to get red dots on my skin or begging bruising??????
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10 years 2 months ago #50565 by Ann
Replied by Ann on topic ITP- full of questions and thankful for forum
The idea with Promacta is get the count to around 50 and keep it there. So reducing the dose if it goes much higher than that will be done. When the count goes up the petechiae (red dots) and bruising will be less.
  • Sandi
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  • Sandi Forum Moderator Diagnosed in 1998, currently in remission. Diagnosed with Lupus in 2006. Last Count - 344k - 6-9-18
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10 years 2 months ago #50569 by Sandi
Replied by Sandi on topic ITP- full of questions and thankful for forum
If all is going well with Promacta, there doesn't have to be a next step. You can keep going with as long as it works and as long as you don't have side effects. Promacta can sometimes induce remission, so that could be possible sometimes in the future.
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The Platelet Disorder Support Association does not provide medical advice or endorse any medication, vitamins or herbs. The information contained herein is not intended nor implied to be a substitute for professional medical advice and is provided for educational purposes only. Always seek the advice of your physician or other qualified healthcare provider before starting any new treatment, discontinuing an existing treatment and to discuss any questions you may have regarding your unique medical condition.


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