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Do you have insomnia with ITP?

  • mrsb04
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  • ITP since 2014. Retired nurse. My belief is empower patients to be involved as much as possible in their care. Read, read, read & ALWAYS question medics about the evidence base they use.
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10 years 2 months ago - 10 years 2 months ago #50001 by mrsb04
Replied by mrsb04 on topic Do you have insomnia with ITP?
Melinda - my poor sleep pattern manifested before my diagnosis of ITP. I just happened to notice that the higher my count the better I sleep.

Darky do you mean too much or too little vitamin D and what are you being this assumption on?
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10 years 2 months ago - 10 years 2 months ago #50002 by Darky
Replied by Darky on topic Do you have insomnia with ITP?
I mean too little Vitamin D. Vitamin D is essential for a normal immune system function. Maybe a low Vitamin D concentration could let the immune system malfunction so that it kills your own platelets. Ive read some studies which implied that high dose vitamin D could threat patients with ITP:

www.vitamindcouncil.org/blog/case-study-high-dose-vitamin-d-helps-treat-platelet-disorder/
  • Sandi
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  • Sandi Forum Moderator Diagnosed in 1998, currently in remission. Diagnosed with Lupus in 2006. Last Count - 344k - 6-9-18
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10 years 2 months ago #50005 by Sandi
Replied by Sandi on topic Do you have insomnia with ITP?
I've seen quite a few people here over the years with a Vitamin D deficiency. It seems to be an epidemic. I've been on high dose Vitamin D for about six years. None of the people treated here have experienced higher counts due to taking D that I am aware of.

My Mom has it, my sister has it and I have it (low D). Seems like everyone I know that gets the blood work done has the same problem.
  • mrsb04
  • Offline
  • ITP since 2014. Retired nurse. My belief is empower patients to be involved as much as possible in their care. Read, read, read & ALWAYS question medics about the evidence base they use.
More
10 years 2 months ago #50008 by mrsb04
Replied by mrsb04 on topic Do you have insomnia with ITP?
I'm on Vitamin D supplement for osteoporosis . It hasn't made any difference to my platelet count either
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10 years 2 months ago #50021 by Aoi
Replied by Aoi on topic Do you have insomnia with ITP?
Ditto me. I'm allergic to sunlight, so have to rely on vitamin D supplements to avoid the rather nasty deficiency I've had on and off for many years. My platelet count and vitamin D levels are completely uncorrelated.
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The Platelet Disorder Support Association does not provide medical advice or endorse any medication, vitamins or herbs. The information contained herein is not intended nor implied to be a substitute for professional medical advice and is provided for educational purposes only. Always seek the advice of your physician or other qualified healthcare provider before starting any new treatment, discontinuing an existing treatment and to discuss any questions you may have regarding your unique medical condition.


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