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Possible Deep Vein Thrombosis

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11 years 3 months ago #42799 by Rob16
Possible Deep Vein Thrombosis was created by Rob16
Getting ready to take Ellen to the Emergency Room with swelling in one calf and ankle that won't go away. Suspect possible deep vein thrombosis resulting from a fall she took last week... at least need to rule it out. The problem of course is the usual anticoagulant treatment would be complicated by platelets around 20, so this may end up as a hospital stay.

Any suggestions greatly appreciated. Prayers as well!
  • Sandi
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  • Sandi Forum Moderator Diagnosed in 1998, currently in remission. Diagnosed with Lupus in 2006. Last Count - 344k - 6-9-18
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11 years 3 months ago #42800 by Sandi
Replied by Sandi on topic Possible Deep Vein Thrombosis
Oh Rob, as soon as I saw this I felt sick. My only advice, make sure those ER docs are thorough and know what they are doing. Some don't believe clots are possible with low counts. Insist on a Hematologist, and find out why she'd clot with low counts (APS?). It can be tricky. Let me know!

Does it hurt? Is it red?
The following user(s) said Thank You: Rob16
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11 years 3 months ago #42801 by Rob16
Replied by Rob16 on topic Possible Deep Vein Thrombosis
Swollen, red, warm, and sore.
In the ER waiting for bloodwork and ultrasound before seeing md.
Will definitely follow your advice and insist on hema if we don't like the answers we get.
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11 years 3 months ago #42803 by Vdeutsch85
Replied by Vdeutsch85 on topic Possible Deep Vein Thrombosis
Sending positive vibes your way! Keep us posted!
The following user(s) said Thank You: Rob16
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11 years 2 months ago #42809 by Rob16
Replied by Rob16 on topic Possible Deep Vein Thrombosis
Finally saw ER doc at 5:00 am. No sign of DVT on ultrasound, but doc said it was a valid concern. Platelets are at a new low of 11k. ER doc thinks the swelling is related to the low platelets. Ellen's hematologist was consulted and she prescribed high dose dexamethasone pulse.

I don't remember hearing of swelling as a symptom of low platelets except with bruising.
  • Sandi
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  • Sandi Forum Moderator Diagnosed in 1998, currently in remission. Diagnosed with Lupus in 2006. Last Count - 344k - 6-9-18
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11 years 2 months ago #42810 by Sandi
Replied by Sandi on topic Possible Deep Vein Thrombosis
Well that's good! Did they do a D-Dimer?

The only reason I can think of for swelling would be if the blood pooled or if there was a hematoma, but you'd think it would be bruised in that case. Very strange.
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11 years 2 months ago #42813 by Winnifred
Replied by Winnifred on topic Possible Deep Vein Thrombosis
Sending thoughts and Prayers!

Glad to hear they ruled out a clot! Here's hoping the treatment boost the numbers up to a more livable level!
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11 years 2 months ago #43148 by SuperDave1
Replied by SuperDave1 on topic Possible Deep Vein Thrombosis
Hi Rob,

I've had experience with DVT as i have a Lupus antogen, which may be factorthat led to my heart attack in'04 . over the years my treatment has been Quarterly checkups with specialists ,
blood labs every 2-3 weeks to check ( pt/in,cbc) so as to regulate my thinners and also platelets,

they also put filter in when i was in surgery to gaurd against clot moving to organs.
as for the swelling ? i experienced a fall and leg bleeds twice, had same symptoms ,
could only be ademia ? compression stockings helped me!
I'm 56 , and though I can no longer work F/T, have been recovering nicely since my last Lupus
flareup, even starting to exercise again after 20 years!
I go fishing regularly for peace of mind,
THANKS
SUPERDAVE
STAYING POSITIVE
  • Sandi
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  • Sandi Forum Moderator Diagnosed in 1998, currently in remission. Diagnosed with Lupus in 2006. Last Count - 344k - 6-9-18
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11 years 2 months ago #43150 by Sandi
Replied by Sandi on topic Possible Deep Vein Thrombosis
Dave:

Do you have Lupus or the Lupus Anticoagulant or both?
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11 years 2 months ago #43152 by SuperDave1
Replied by SuperDave1 on topic Possible Deep Vein Thrombosis
both
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