New Treatments? Thyroid nodules

Hey guys hope everyone's well I'm 26 had itp since I was 17 tried everything in the book steroids rituxan(seriously allergic) promacta nplate(had a stroke in October from it) colchicine splenectomy ivig I'm sure I'm forgetting some but I've had it all ivig never worked for me until I had a stroke it was lasting anywhere from 2 to 3 weeks now it's down to about eight days of course lol so I went to see a dr at the moffit center in Tampa and he wants me to try promacta again do I guess I'm gonna give it a whirl since I refuse to touch nplate again I know same concept but that drug now scares the hell outta me does anyone know if there are any new treatments in the works? Has anyone heard of thyroid nodules being a factor in itp? I hate itp thought I'd just add that lol it could always be worse it's just soooo frustrating I hope everyone's ok out there one more question does anyone out there live at my numbers 1-5 normally with no treatment I'm tired of the drugs makin me sick n thinking about just livin with it thanks guys for any answers

Did you have a scan of the nodules to see what they are?

i live at pretty close to your numbers, between 2 and 9. however, i havent had a count done in about 5 years so i dont know what i'm at now. i was diagnosed in 2001 and to this day never treated, but i take a couple of things into consideration.

i'm totally asymptomatic, not a bruise in sight. but that could be because i also have type 2 diabetes, and i forget where i read it buy type 2 diabetics have very sticky platelets, so that could account for being asymptomatic.

i retired and right away i felt the stress go away and my ibs cleared up, some say gut issues contribute to itp. if i had any sense i would have a cbc and see if my counts went up. not that i recommmend this but i dont seek any medical attention and treat everything myself, but i dont have a family so its only my life im impacting if i die. you wouldnt want to cause your family grief.

you could go to a naturopath and have them give you an examination. just like a conventional doctor, they dont have the answer as to what causes itp, but if they find imbalances, correcting them may improve your count. for example, there is a lot of information out there that fungal and bacterial infections lower platelet and other bone marrow cell counts.