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Onion Craving

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13 years 11 months ago #24616 by plopper
Onion Craving was created by plopper
I know this is weird, but every time I crash I get this overwhelming urge to eat onions. Has anyone have this? I know when you crave ice it means you could be anemic, but has anyone ever heard about an onion craving?

An internet search doesn't give any big consensus (kidney issues, liver overload, vitamin C..but no big answer).

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13 years 11 months ago #24620 by mobilekatz
Replied by mobilekatz on topic Re: Onion Craving
Thats an odd one, as one of the foods I have been advised to avoid is onions!!!
(tried avoiding all the foods on the avoid list, platelets went up by 1, gave up after that!)

Wonder if anyone else has any ideas!

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  • Sandi Forum Moderator Diagnosed in 1998, currently in remission. Diagnosed with Lupus in 2006. Last Count - 344k - 6-9-18
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13 years 11 months ago #24625 by Sandi
Replied by Sandi on topic Re: Onion Craving
Never heard that one! I love onions all the time.

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13 years 11 months ago #24649 by markhudson
Replied by markhudson on topic Re: Onion Craving
Ok there is a current thought that there is a compound Quercetin in onions that acts as a anti-inflammatory and antihistamine effect (study done Ex vivo not in a human) But not sure why ITP sufferer would crave it for either of those reasons

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13 years 11 months ago #24677 by mobilekatz
Replied by mobilekatz on topic Re: Onion Craving
There is a list of food on the PDSAs website that are thought to be linked to reducing platelets, included on this are Onions, garlic and tomatoes (my favourite foods!), and alcohol!
I spent 6 months following the list to see if this could help, as while my levels tend to sit at 35-50k and they have been there for the last 4 years, (since diagnosis) I do bruise really badly.
My Doctor tells me I bruise worse than I should, but they are unwilling to do anything unless my levels drop below 20- and in fact have been signed off by my consultant as he can see nothing he can do to help!

After 6 (boring) months with no improvement in my platelets I went back to eating and drinking as normal.
I know that if I am tired, and drink a bit more than normal for a few days my levels do drop, and if I get plenty of sleep and eat healthy they come back up.

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13 years 11 months ago #24679 by Ann
Replied by Ann on topic Re: Onion Craving
Most of the foods mentioned including onions and tomatoes reduce platelet aggregation and not actual platelet numbers. Apart from the two things we know about, quinine in drinks and walnuts for the few sensitive people, no foods are known of yet that affect platelet numbers.

Katz, that sounds like a brilliant experiment and I applaud you for keeping to the diet for as long as 6 months. One thing, are you sure that your platelet count falls because you are tired or is it the other way around and that you feel tired because your count has fallen? I know for me it's the latter, I can tell when my count is below 100 because I feel far more tired. When I'm perky and sleeping well, I know my count is good.

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13 years 11 months ago #24680 by mobilekatz
Replied by mobilekatz on topic Re: Onion Craving
Hi Ann- thanks for you reply!

The job I do involves travelling a lot, and we have a few conferences we have to go to and these involve long days and late nights, afterwards my platelets have dropped to around 35 and I feel rotten. (have had the levels checked after 3 conferences and each time they are down!)
Ideally I would change job to one with less travel and thats less tiring, but I enjoy my job, and dont want to have to change career due to ITP.
My boss tells me to rest as much as I can, but I have found the more I try to do the better I cope, and if I take time out and try to rest I am just as tired!
I have perfected the art of napping, and often have a 30 min doze in a motorway services if I need it on a long drive.
I tried the diet, as I thought it was worth a try, as if someone found a food to give up that increased my levels and reduced the bruises I would think it was worth the sacrifice!

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13 years 8 months ago #26747 by april86
Replied by april86 on topic Re: Onion Craving
wow, this is funny.. and im glad to see it wasnt just me....
i was diagnosed with itp and have been on several medications... anywho.. yes i had a strong craving for onions... i ate them with onions and the crazy this about it is i really dont like them. i also had a craving for chocolate mint ice cream...that im not a fan of either.

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13 years 8 months ago #26978 by sem40
Replied by sem40 on topic Onion Craving
Onions make me insanely thirsty after I eat them. No cravings tho.

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Platelet Disorder Support Association

Platelet Disorder Support Association
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The Platelet Disorder Support Association does not provide medical advice or endorse any medication, vitamins or herbs. The information contained herein is not intended nor implied to be a substitute for professional medical advice and is provided for educational purposes only. Always seek the advice of your physician or other qualified healthcare provider before starting any new treatment, discontinuing an existing treatment and to discuss any questions you may have regarding your unique medical condition.