Platelet Disorder Support Association

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Cas of ITP

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13 years 8 months ago #21626 by mali4u683
Cas of ITP was created by mali4u683
Helo TO ALL MY FRIENDS

i am very worried about my cousion...she is 23 years old...and she is patient of ITP Last 5 years .

she platelates some time reduce some time increase ...DOCTOR Saying ..its a 2 solution...one she can take a tablet deltacortril long life .but tablet side effect also ..soiling on body ...and second solution..remove spleen then no problem for her life...so we are very worried about that..please advice what we can do....if we remove spleen so its normal..and normal platelates and not any danger her life after remove spleen...so we can spleen remove about any tention plz help me
  • Sandi
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  • Sandi Forum Moderator Diagnosed in 1998, currently in remission. Diagnosed with Lupus in 2006. Last Count - 344k - 6-9-18
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13 years 8 months ago #21629 by Sandi
Replied by Sandi on topic Re: Cas of ITP
There is no guarantee that spleen removal will cure ITP. Sometimes the surgery fails. Also, it is not normal to take steroids for life with ITP.

Where are you located?
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13 years 8 months ago #21637 by Dean
Replied by Dean on topic Re: Cas of ITP
Agree with Sandi! Do you know what her counts are now and what the counts have been averageing?
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13 years 8 months ago #22026 by farida
Replied by farida on topic my son
do you remember me sandi, my son got itp when he was 16 years old, two years off and on for ivig, steroid, all types of cortisone, and spleen removed on 04/10 , relapse after two month back to the hospital with 2k count, and remsion for 10 months but relapse and 3 times attack for last month , so sad . he back to cortisone again , he doesn't like to do rituxmab now , spleen removed did not help him,
  • Sandi
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  • Sandi Forum Moderator Diagnosed in 1998, currently in remission. Diagnosed with Lupus in 2006. Last Count - 344k - 6-9-18
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13 years 8 months ago #22033 by Sandi
Replied by Sandi on topic Re: my son
Of course I remember you! I'm sorry to hear about your son. I was really hoping his counts would stay up.
The following user(s) said Thank You: farida
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The Platelet Disorder Support Association does not provide medical advice or endorse any medication, vitamins or herbs. The information contained herein is not intended nor implied to be a substitute for professional medical advice and is provided for educational purposes only. Always seek the advice of your physician or other qualified healthcare provider before starting any new treatment, discontinuing an existing treatment and to discuss any questions you may have regarding your unique medical condition.


Platelet Disorder Support Association
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