Remember Me     Forgot Login?   Sign up   •  Web site Help & Info

!!! DISCUSSION GROUP RULES !!!

1. You must be a registered website user in order to post and comment. Guests may read only.
2. Be kind and helpful, not rude and cynical.
3. Don't advertise or promote anything. You will be banned from the group.
4. Report problems to the moderators. THANK YOU!

Choosing versus being done to

More
13 years 9 months ago #20479 by eklein
Choosing versus being done to was created by eklein
I'm noticing the difference in how people describe their treatments - a lot of us, especially new here, talk about doctors deciding to do this treatment or that to us. Some of us, especially after we've been in the whole medical arena for a while dealing with this, talk about choosing (usually in conjunction with the doctor) a treatment.

I think the difference is having knowledge of the disease and the research and the options and the risks, and having a realistic perspective of the medical profession. This is a good place to acquire all of that.

Erica

And she was!
Diagnosed May 2005, lowest count 8K.
4/22/08: 43K (2nd Rituxan)
10/01/09: 246K, 1/8/10: 111K, 5/21/10: 233K
Latest count: 7/27/2015: 194K
  • Sandi
  • Offline
  • Sandi Forum Moderator Diagnosed in 1998, currently in remission. Diagnosed with Lupus in 2006. Last Count - 344k - 6-9-18
More
13 years 9 months ago #20481 by Sandi
Replied by Sandi on topic Re: Choosing versus being done to
Good point, Erica!
More
13 years 9 months ago #20515 by Dean
Replied by Dean on topic Re: Choosing versus being done to
Very good point. At first we usually just go with what the Dr says until we have been riding the rollercoaster awhile. Then we start choosing our treatments. My daughter has a friend that was recently diagnosed with ITP. She is scheduled to have a Spleenectomy next week!! I told her I felt this treatment was to soon and that there are many other options out there. I suggested she visit this site and to reconsider a Spleenectomy.
More
13 years 9 months ago - 13 years 9 months ago #20523 by benny
Replied by benny on topic Re: Choosing versus being done to
Well said Erica, I could not agree more. In fact that's the same path I followed myself.
Benny.