I have severe refractory itp. My numbers are usually sub 10k. I have done just about everything until recently, when I had a pulmonary embolism due to an adverse reaction to IG, which shot my numbers over 1 million. I was given a anti-coagulent and a steroid I have never taken called decadron. I took the decadron for approximately three months in pulse doses and now I have had normal numbers for four months without having to take anything. I have gotten used to living with itp, and treatments that dont work, my hemo says that there have been cases where decadron has caused extended periods of remission. So i dont know what to think, other than be thankful for where i am today. Numbers today..389k!!!
