Please note our new starting time of 8.00PM Tuesdays.
Hi Everybody,
Aussie ITP Chat next Tuesday night at 8.00pm Australian Eastern (Standard Time)
8.00pm Queensland (Standard Time)
7.30pm South Australia (Standard Time)
5.00pm West Australian (Standard Time)
10.00pm New Zealand (Standard Time)
11.00am London (Daylight Saving Time)
6.00AM New York.( Daylight Saving Time)
Note......AM times apply to Tuesday Mornings...
We are Located on the PDSA ‘Home’ site.
www.pdsa.org/
After logging in, come and join us,we just chat in a friendly manner, about ITP problems as they affect us, everyone is welcome. Thanks……stebbo
Thank you Milly for your kind words, on our last posting, you are right, I do not always get around to replying, must improve that, but the posting is designed to let anyone know they are welcome to join us, and you certainly do not have to be an Aussie or New Zealander, everyone is most welcome. WE have been running this chat since the late 1990s. helping many people with ITP, not in a medical sense, but because we have ITP ourselves, we have been able to relate our own experiences. For example when I was 1st diagnosed with ITP, and told I had a lack of platelets, I only knew platelets to be something you would have an Entree on:) However I and others regularly on our chat have learnt a lot since then. When I was 1st diagnosed (1995)I had a count of 8k, since then our local Heomo. handed me over to a Professor here in Sydney, as he did not know how to continue treating me. My Professor specialised in ITP, and was on the same team as your Dr James Bussell, After that I had 4 years of tests, Splenectomy, Drug trial, which was using Dexamethasone, and I kept going back to very low platelets, following the Dexamethasone , I contracted Pheumococcal Meningitis, after which my platelets settled down around 80k for a couple of years. Then I volunteered to trial Eltrompobag (Promacta) I responded to this so well they had to stop the trial early as my platelets were going too high, Since then we have confirmed my ITP can be triggered by a cold, so since 2008 I have managed to avoid a cold and my platelets have remained in the range of 140k to 268k. So as you can see the problems I have given my Doctors, has been quite an education....We have others, who have had more experiences than myself, they also are happy to help....Thank You, .....stebbo...
