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Tonic Water??

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14 years 4 months ago #15269 by tdecker
Tonic Water?? was created by tdecker
Has anyone heard the theory that tonic water, specifically quinine, may be a cause of ITP? I love tonic water and I had heard this, but am now getting heck from my mother-in-law for drinking it in fancy non-alcoholic drinks so I cannot have a nice glass of wine now.
Traci
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14 years 4 months ago #15270 by eklein
Replied by eklein on topic Re: Tonic Water??
Yes, it's possible to be sensitive to quinine and it can cause low platelets. It doesn't affect everyone that way, but it's worth considering.
Erica
And she was!
Diagnosed May 2005, lowest count 8K.
4/22/08: 43K (2nd Rituxan)
10/01/09: 246K, 1/8/10: 111K, 5/21/10: 233K
Latest count: 7/27/2015: 194K
  • Sandi
  • Offline
  • Sandi Forum Moderator Diagnosed in 1998, currently in remission. Diagnosed with Lupus in 2006. Last Count - 344k - 6-9-18
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14 years 4 months ago #15276 by Sandi
Replied by Sandi on topic Re: Tonic Water??
Definitely. There are some people who develop antibodies against platelets due to quinine. That doesn't mean you have them, but you don't know for sure.

I have ITP (in remission) and take a drug that has quinine in it. It has not affected my counts at all.

www.ncbi.nlm.nih.gov/pubmed/9915279
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14 years 4 months ago - 14 years 4 months ago #15307 by Tad Moody
Replied by Tad Moody on topic Re: Tonic Water??
Traci, I think the best solution here is to just stop hanging out with your mother-in-law.:lol:
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14 years 4 months ago #15331 by Ann
Replied by Ann on topic Re: Tonic Water??
I searched for papers on it when I was diagnosed and it seems that those who are sensitive to quinine will have an immediate drop in platelets which will also immediately recover when the quinine is out of the system. It's rare and didn't have any effect on my counts.
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The Platelet Disorder Support Association does not provide medical advice or endorse any medication, vitamins or herbs. The information contained herein is not intended nor implied to be a substitute for professional medical advice and is provided for educational purposes only. Always seek the advice of your physician or other qualified healthcare provider before starting any new treatment, discontinuing an existing treatment and to discuss any questions you may have regarding your unique medical condition.


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