Platelet Disorder Support Association

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Slowly dropping

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14 years 5 months ago #15033 by Dean
Slowly dropping was created by Dean
Starting to think the last round of Rituxin is wearing off. It has been 19mo since the last treatment. My highest count was 350k now down to 165k. I know that is still a good count but I just have that feeling.
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14 years 5 months ago #15035 by specialk16
Replied by specialk16 on topic Re: Slowly dropping
Hey Dean I went almost 2 years before mine started to drop again. And the 2nd time that I tried it, my body totally rejected it and I had to stop treatment. All I can say is good luck!
Kasha
MCTD (Lupus/Raynauds), Sjogrens, ITP
Plaquenil 400 mgs
Prednisone 10 mgs
Imuran 50 mgs
Rituxan 2005 and 2008 (can't take anymore, body rejected it)
14 years 5 months ago #15037 by
Replied by on topic Re: Slowly dropping
Dean lets get the feeling you will level out at a decent count - think positive :)
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14 years 5 months ago #15040 by DeeDee Marie
Replied by DeeDee Marie on topic Re: Slowly dropping
Dean, 19 months is a long time to have good counts. Maybe you've been extra tired or have taken meds that can bring them down. Do try to think positive!
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14 years 5 months ago #15041 by specialk16
Replied by specialk16 on topic Re: Slowly dropping
Yes, stay positive... I just can't take rituxan anymore and have been treated for prednisone for the last 3 years.... But yes, crossing my fingers that you will level out. :)
Kasha
MCTD (Lupus/Raynauds), Sjogrens, ITP
Plaquenil 400 mgs
Prednisone 10 mgs
Imuran 50 mgs
Rituxan 2005 and 2008 (can't take anymore, body rejected it)
  • Sandi
  • Offline
  • Sandi Forum Moderator Diagnosed in 1998, currently in remission. Diagnosed with Lupus in 2006. Last Count - 344k - 6-9-18
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14 years 5 months ago #15050 by Sandi
Replied by Sandi on topic Re: Slowly dropping
I've had that feeling and ended up pleasantly surprised. Dropped into the 60's a few weeks after a great response from Rituxan, but went back up again. It actually happened twice.

No worrying until you have to!
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14 years 5 months ago #15059 by Dean
Replied by Dean on topic Re: Slowly dropping
Thank you all so much for your comments. It really helps talking to people that go through the same thing. Staying positive is definatly a powerful tool.
I have been unusually exhausted for several weeks so I decided to have a Testosterone level done. Results were 1/2 of what the low range is. Liver enzymes are 3 times what the high end is. So, I am thinking if I can get these two levels where they are supposed to be I should feel pretty good. My luck the Platelets will drop. I know think positive.
Thank You all again for your support!!!
Platelet Disorder Support Association

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The Platelet Disorder Support Association does not provide medical advice or endorse any medication, vitamins or herbs. The information contained herein is not intended nor implied to be a substitute for professional medical advice and is provided for educational purposes only. Always seek the advice of your physician or other qualified healthcare provider before starting any new treatment, discontinuing an existing treatment and to discuss any questions you may have regarding your unique medical condition.


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