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hair loss

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14 years 5 months ago #14998 by meme
hair loss was created by meme
My hair is falling out, I am taking vitamins for this, would someone comment on that for me.....
I had tons of hair, I am getting scared that I am gonna be bald. I don't know what to do, My Dr said its not the ITP, but I disagree............
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14 years 5 months ago #14999 by eklein
Replied by eklein on topic Re: hair loss
It could be related to prednisone (are you taking that?), it could be related to other auto-immune reactions. Is it falling out in patches, or thinning all over, or breaking?

I wore head scarves for a while because I lost a big patch - the scarves are called 'buffs', they are great looking and very comfortable, you could search for them online. My hair grew back!
Erica
And she was!
Diagnosed May 2005, lowest count 8K.
4/22/08: 43K (2nd Rituxan)
10/01/09: 246K, 1/8/10: 111K, 5/21/10: 233K
Latest count: 7/27/2015: 194K
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14 years 5 months ago #15000 by meme
Replied by meme on topic Re: hair loss
no patches eklein, when i run my hands thru it ....out it comes about 10 strands at a time.
  • Sandi
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  • Sandi Forum Moderator Diagnosed in 1998, currently in remission. Diagnosed with Lupus in 2006. Last Count - 344k - 6-9-18
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14 years 5 months ago #15001 by Sandi
Replied by Sandi on topic Re: hair loss
But have you been on any steroids? That could cause it.

It's not because of ITP, but could be the treatments.
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14 years 5 months ago #15002 by meme
Replied by meme on topic Re: hair loss
yes, I did predisones in the beginning, winrho, then decadron, my bloodplatelet had climbed to 151,000 4 weeks ago, I haven't had any steroids in couple of months..............
  • Sandi
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  • Sandi Forum Moderator Diagnosed in 1998, currently in remission. Diagnosed with Lupus in 2006. Last Count - 344k - 6-9-18
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14 years 5 months ago #15005 by Sandi
Replied by Sandi on topic Re: hair loss
Some people have a delayed reaction from the steroids due to hormonal changes. If it doesn't stop in a few weeks, talk to your doctor.
  • Angel85
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  • I am 27 years old from Australia and I have T.A.R Syndrome. My email address is not showing on my profile for some reason so it is blossom_242@hotmail.com for anyone who wants to send me an email.
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14 years 5 months ago #15011 by Angel85
Replied by Angel85 on topic Re: hair loss
I have just been through the same stress, I have recently finished rituxan and whenever I washed it or brushed it, heaps of hair came out. Mine is just starting to get healthy and more stronger again, so try not to stress too much, stress is probally going to make it worse. It will become healthy and strong again, it just takes time.
The following user(s) said Thank You: meme
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14 years 5 months ago #15012 by Dean
Replied by Dean on topic Re: hair loss
Oh how wonderful it would be if we could live with 0% stress. Stress can really reek havoc on ones life.
Try to think positive. Positive thinking is one way to help the mind/body help it's self.
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14 years 5 months ago #15013 by specialk16
Replied by specialk16 on topic Re: hair loss
My hair thinned out when I was on Rituxan too.. it has just not begun to thicken back up again. but as other have said it could be the medications OR another type of autoimmune issue going on with your body. Have you been diagnosed with anything else?
Kasha
MCTD (Lupus/Raynauds), Sjogrens, ITP
Plaquenil 400 mgs
Prednisone 10 mgs
Imuran 50 mgs
Rituxan 2005 and 2008 (can't take anymore, body rejected it)
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14 years 5 months ago #15016 by Bunnie
Replied by Bunnie on topic Re: hair loss
Many of us have ITP and Thyroid conditions. Hair loss is a symptom of thyroid issues. More likely, it caused by one of the treatments, but it may be worth having your doctor run a test the next time your in.
"I am an old man and have known a great many troubles, but most of them have never happened.\" — Mark Twain\\\\\\"Worry is a misuse of the imagination.\" — Dan Zadra
14 years 5 months ago - 14 years 5 months ago #15017 by
Replied by on topic Re: hair loss
In my opinion a complete thryoid panel should be done yearly on adults - I'm glad my MD felt that way.
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14 years 5 months ago #15024 by meme
Replied by meme on topic Re: hair loss
no I havent, The nurses at my clinic suggest that I take Bioten supplements and to barely pat my head when I comb or give myself a do.........I am taking 2 per day, not sure if that is enough, going back to my Hemotoligist this week.
  • Sandi
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  • Sandi Forum Moderator Diagnosed in 1998, currently in remission. Diagnosed with Lupus in 2006. Last Count - 344k - 6-9-18
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14 years 5 months ago #15052 by Sandi
Replied by Sandi on topic Re: hair loss
I don't see how they could suggest that when they are not even sure of the problem.
  • karenr
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  • Diagnosed in 2000, at 59, after being on moderately high doses of NSAIDs for arthritis. Splenectomy and rituxan both failed (2004). Did well on prednisone till summer 2018--then terrible reactions. Promacta since 11-19.
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14 years 5 months ago #15081 by karenr
Replied by karenr on topic Re: hair loss
In my own experience, I have had hair loss some months after my body has undergone a shock of some kind (general anesthetic, high fever, etc.). Perhaps the drugs you took shocked your body in this way. My hair always grew back.
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