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Should I go for Rituxan Or IvIg

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14 years 6 months ago - 14 years 6 months ago #14011 by brishti
Should I go for Rituxan Or IvIg was created by brishti
Hi Guys
I had my last treatment of Rituxan on may 2007 and I was doing very good with plt 250 to 350K till february 2011.On February 14th 2011 my plts dropped to 20k & I took prednisone for 2 wks( I was in back home at that time, so I had no other options).After the pred I was ok for few days & again on march 09, 2011 I had my blood work done & plt was 14k. So I had 2 shots of IvIg treatment(march 9th & 14th). After that i was doing good. But today april 04, 2011 it seems like my plt dropped again as I saw lots of rashes on my arms & legs.so going for blood work again :(
While I saw my hema she told me I could either take Rituxan ( that might give me a remission) Or I could go with IvIg (that might work for 21 days max). At this point I am unsure what should i take as I told u guys before that I was planning to get pregnant & with rituxan I had to stop thinking abt the pregnancy at least for 12 months after the treatment.I am really confused...and Frustated....:(
What's your opinion?
Thanks

February 14, 2011- 20k(treated with prednisone for 2 wks)
February 25, 2011- 989k
March 04, 2011 - 650k
March 07,2011 - 141k
March 08, 2011- 27k
March 09, 2011- 14 K (Treated with IvIg 1st shot)
March 14, 2011- Cbc was not done ( 2nd shot of IvIg)
March 22, 2011- 951K
March 29, 2011- 450 K
April 04, 2011- 6 K
April 05, 2011- 0k (1 shot of IvIg)

Dream as if you'll live forever, live as if you'll die today.

Nowrin
  • server
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  • newcreationchangingdaily
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14 years 6 months ago #14025 by server
Replied by server on topic Re: Should I go for Rituxan Or IvIg
I know you're only looking for advice, but ultimately only you can choose. I don't know the side effects of Rituxan on a woman wanting to get pregnant, or one already there! And you know IVIg only works for a short while. How come those are your only 2 options?

My flesh and my heart may fail, but God is the strength of my heart and my portion forever.
Psalm 73:26
Blessings,
gretchen
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14 years 6 months ago - 14 years 6 months ago #14027 by brishti
Replied by brishti on topic Re: Should I go for Rituxan Or IvIg
Hi Server thanks for the reply. Actually I don't wanna take prednisone as i hate the side effects & I have to take it for long period...hate that :angry: Winroh never worked for me.My hema is not considering giving me Nplate yet...she was telling me about Danazol but she said I could get lots of acne as side effect ...anything with face I hate that ...so not gonna go with that either...So only IvIg & rituxan left :(

Dream as if you'll live forever, live as if you'll die today.

Nowrin
  • Sandi
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  • Sandi Forum Moderator Diagnosed in 1998, currently in remission. Diagnosed with Lupus in 2006. Last Count - 344k - 6-9-18
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14 years 6 months ago #14030 by Sandi
Replied by Sandi on topic Re: Should I go for Rituxan Or IvIg
Well, if you're willing to wait a year after Rituxan to get pregnant, I'd consider that since you had such a nice remission last time. Either that or have frequent IVIG which would get old pretty fast. Good luck with your decision!
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14 years 6 months ago - 14 years 6 months ago #14093 by brishti
Replied by brishti on topic Re: Should I go for Rituxan Or IvIg
Thanks sandi. I have decided to go for rituxan. Yesterday I went to hospital & got a shot of IvIg.I signed the paper for Rituxan , it may take 3/4 wks to approve.In the mean time if plts drop again I will get Ivig.My platelet was 0 yesterday ...Hoping to get the rituxan soon & keeping the fingers crossd!

Dream as if you'll live forever, live as if you'll die today.

Nowrin
  • Sandi
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  • Sandi Forum Moderator Diagnosed in 1998, currently in remission. Diagnosed with Lupus in 2006. Last Count - 344k - 6-9-18
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14 years 6 months ago #14105 by Sandi
Replied by Sandi on topic Re: Should I go for Rituxan Or IvIg
Good luck!
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14 years 6 months ago #14110 by iam4ual
Replied by iam4ual on topic Re: Should I go for Rituxan Or IvIg
Just a quick question. Do you still have your spleen? My dr does not want to use Rituxan unless i get my spleen removed and that does not work. So I was just curious.

Shannon
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14 years 6 months ago - 14 years 6 months ago #14113 by brishti
Replied by brishti on topic Re: Should I go for Rituxan Or IvIg
Hi Shannon, I had my spleen removed on March 2007, it was unsuccessful though. My plt dropped within 7 days of my splenectomy. Then I was given Rituxan & was on remission for almost 4 yrs.

Thanks

Dream as if you'll live forever, live as if you'll die today.

Nowrin