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latest count

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14 years 6 months ago #13793 by CindyL
latest count was created by CindyL
Well, I had my count done on the 27th. Somewhere in the high 200's (287-297) is what I was told when I called for the results. I couldn't get an actual number from the nurse. Still in the normal range, but it did drop about 116k in two months. My next count is in May and then I see my hema in June. I'm not panicking yet. I'll just wait and see what happens in May.
14 years 6 months ago #13805 by
Replied by on topic Re: latest count
Cindy we will just keep our fingers crossed your count stays up there in the normal range!

Crazy the nurse wouldn't give you the exact number.
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14 years 6 months ago #13811 by Rita
Replied by Rita on topic Re: latest count
Hello Cindy,
wow............287+, that's great. I am so happy for you. It could be that your platelets settled around this range! Thanks for sharing your story. You have been and still are a great inspiration.
  • Sandi
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  • Sandi Forum Moderator Diagnosed in 1998, currently in remission. Diagnosed with Lupus in 2006. Last Count - 344k - 6-9-18
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14 years 6 months ago #13826 by Sandi
Replied by Sandi on topic Re: latest count
That's great news! Never thought we'd see that day for you!
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14 years 6 months ago #13833 by eklein
Replied by eklein on topic Re: latest count
Excellent news - and super weird - 'it's in the upper two hundreds, it ends with a seven but I can't tell you anything else' - hahaha - what sort of instructions is that nurse operating under? Anyway - you've had a full (normal counts) remission from rituxan and statistically you stand a very good chance of sustaining that remission for years. So not to worry!
Erica
And she was!
Diagnosed May 2005, lowest count 8K.
4/22/08: 43K (2nd Rituxan)
10/01/09: 246K, 1/8/10: 111K, 5/21/10: 233K
Latest count: 7/27/2015: 194K
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14 years 6 months ago #13837 by CindyL
Replied by CindyL on topic Re: latest count
Thanks all!

They were going to be busy that day, so I think the nurse just didn't have time to check the computer.

Yeah, Sandi, I didn't think I'd ever get to this point either.

I'm just taking things one day at a time. Not worrying about counts and will see what happens at my next blood draw.
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14 years 3 weeks ago #18627 by Rita
Replied by Rita on topic Re: latest count
Hello Cindy,
hope all is well. Just wanted to say hello and see how your latest counts are? I always remember when you have your blood test because my husband has the test around the same time. I sure hope your platelets bounced back from that stomach bug you had!
Thanks again for sharing your story.
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14 years 3 weeks ago #18635 by CindyL
Replied by CindyL on topic Re: latest count
Hi Rita,

I've had a couple of really low counts this past summer; 35 and 3 weeks later, just up to 49. At my last blood draw on the 18th, they were back up to 165. So I was happy about that.
  • Sandi
  • Offline
  • Sandi Forum Moderator Diagnosed in 1998, currently in remission. Diagnosed with Lupus in 2006. Last Count - 344k - 6-9-18
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14 years 3 weeks ago #18654 by Sandi
Replied by Sandi on topic Re: latest count
How weird is that? Oh well - do the happy dance since you're doing okay now!
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14 years 3 weeks ago #18661 by CindyL
Replied by CindyL on topic Re: latest count
Yeah, it was a little scary. I thought I was going back to my past "normal".
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14 years 3 weeks ago #18671 by Rita
Replied by Rita on topic Re: latest count
Cindy, how wonderful, your platelets recovered.
I am so happy for you. Maybe the stomach bug caused the drop, but it is all good now.
Marty's platelet level has been in the normal range since his Rituxin treatment. I am so thankful!
Here is to steady normal count platelets for a long long time...........cheers!!
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14 years 3 weeks ago #18675 by milly
Replied by milly on topic Re: latest count
Happy for you Cindy, strange how they jumped around for a while though.
There is no practice run in life.
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13 years 11 months ago #19695 by mizrenaissance
Replied by mizrenaissance on topic Re: latest count
Congrats to you! My "normal" counts hover in the 50-60k range so 165k is almost like bragging - am I'm glad you can!! ;) - but a month ago mine came back (from my internist, not my hemonc) at 28k. I was shocked because I have no bruising, bleeding, petechiae, fatigue. Hemonc doesn't seem worried, wants to have the internist retest at 6 weeks and if still low, I'll go in so they can do it in their lab.
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13 years 10 months ago #19720 by CindyL
Replied by CindyL on topic Re: latest count
Had my latest count done this past Sunday, and they are at 247. Don't know what caused the drop, but they're back to normal, so I'm happy.
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13 years 10 months ago #19729 by mizrenaissance
Replied by mizrenaissance on topic Re: latest count
I'm happy for you, hope they stay that way!
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13 years 10 months ago #20057 by Rita
Replied by Rita on topic Re: latest count
Hi Cindy,
wow, I am so very happy for you.............your platelets are back to normal!!!!!!
Marty had his platelet count around the same time, his are 260...........what a relieve. My heart always pounds like crazy during this time of "waiting" for the results.
Thanks again Cindy for sharing your story.
Here is to many, many ..many more years of happy normal platelet counts.
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13 years 10 months ago #20062 by Dean
Replied by Dean on topic Re: latest count
Awesome!!! Hope your counts stay in that range.
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13 years 10 months ago #20065 by CindyL
Replied by CindyL on topic Re: latest count
Me too! Thanks, guys.
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13 years 8 months ago #21836 by Rita
Replied by Rita on topic Re: latest count
Hello Cindy,
my husband just had his platelet test and thank god his platelets have been stable in the 240. He now has to have his CBC every 3 month. I was thinking about you since you usually have the test around the same time as Marty. How are your platelets doing? Hope all is well!!
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13 years 8 months ago #21853 by CindyL
Replied by CindyL on topic Re: latest count
Hi Rita! Good to hear that Marty's counts are in the 200's. My last test on the 15th of this mth. my count was 340. At my last hema app't, he said I could go every 3 months, but never sent the orders over to the hospital, so I still go every 2; not that I mind, tho.

Thanks for asking! Hope Marty's counts stay up.
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13 years 8 months ago #21859 by Rita
Replied by Rita on topic Re: latest count
Wonderful...................340, I am so happy for you. Thanks for letting me know. Here is to ongoing happy, healthy and stable normal count of platelets. :-)
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13 years 4 months ago #24819 by Rita
Replied by Rita on topic Re: latest count
Hello Cindy,
I was thinking about you and wondering how your latest platelet count was. Marty's count so far has been stable around 240-260............we are so thankful. I sure hope it is gonna stay that way. Thanks again for sharing your story.....it has helped us so much!
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13 years 4 months ago #24863 by CindyL
Replied by CindyL on topic Re: latest count
Hi Rita, counts are up in the 300's. Doing just fine. Don't wear my medicalert bracelet when I go out; feel nervous without it; I just never think to put it on.

Great to hear how Marty's counts are doing! Hope they continue to stay up there.
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13 years 4 months ago #24866 by Rita
Replied by Rita on topic Re: latest count
Wow Cindy, that's Great, I am so happy for you, hopefully it is gonna stay this way for a long long time, even better for good!!! :-)
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