Interesting to read everyone's threads. I used to participate on the old ITP board. I have ITP and Lupus and have been away for awhile. After, treatments in 2,000 I was pretty much in remission- platelet count would stay in the 80's until a pregnancy in '09, ANA and anti-DNA went from high positives to normal. Counts went back up after pregnancy and had been holding in the 80's. I was just in a severe car accident and my count showed up at 21 then 15. I am currently in the debate of do I treat or wait and see what happens. I never put much into the "threat" of what if I was in a severe accident. Well, now I had a severe accident and I have a little one running around. I guess it is giving me a different perspective. I go to the hemo tomorrow and will have to decide what to do. I have some petiche and I guess blood blisters on my gums- these symptoms are new to me. My last treatment I was on prednisone, plaquenil, methotrexate and then added in four treatments of rituxan. It worked like a miracle. After years of treating with no success (and increasing Lupus symptoms)I suddenly felt like a different person (about a month after the rituxan treatments) I slowly weaned myself off of all meds and was med free for about three years. I used IVIG and WinRho with little success during my pregnancy. I never have much of a response to prednisone. It usually gives me a little lift then my counts plummet. I guess I just wanted to touch base and see if anyone had any wisdom for me. I always used to find comformt in this forum. I think the only people who can understand ITP are people who are going through it themselves! Thanks and take care!
